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OLP prescriptions ? What do you use? What seems to work what doesn't

Posted , 4 users are following.

donna18720
donna18720

I have just been prescribed another steriod gel that says don't use in your mouth?    

I was first prescribed Fluocinoncide gel. Didn'rt change anything and

 Made me have stomach upset now another gel was prescribed Desoximetasone gel. My dermatologist was supposed to prescribe a paste or a mouthwash but when I picked it up just another gel that says don't use in mouth, ugh. It also says to test on my forearm for three days before using in my mouth,

Personally I am frustrated. It seems even she does not have a clue how to treat. 

I thought it would be good to have one place where we can put what we have used and the results. And any side effects

0 likes, 9 replies

9 Replies

  • sheila_j123
    sheila_j123 donna18720

    Posted

    Hi Donna

    Its so painfull olp isnt it . I have had stetoid mouthwash from my doctor for what good it did. I am now using Difflam mouthwash and its quite a good help. I rinse it around my mouth for a about 60 to 90 seconds BEFORE i clean my teeth and i ts a lot more bearable as the difflam numbs inside of cheeks and tongue . Thats all i have to offer Donna . Give it a go if you havnt already you have nothing to lose. Good luck

    • donna18720
      donna18720 sheila_j123

      Posted

      do you know if the Difflam has lidocaine? I'm allergic  

      yeah the steroids are not helpful for me

      Thanks for your input

  • linda32054
    linda32054 donna18720

    Posted

    My dermatologist has prescribed several different gels.

    Clobetasol Ointment

    Tacrolimus Ointment

    Betamethasone Dipropionate Gel

    Yes, all of them say not to put them in your mouth. Guess that warning just doesn't apply to us!!!

    None of them work very well, I do much better on a systemic medicine like,

    Mycophenolate Tabs (which has bad side effects as in weight gain and hair loss)

    I just started on Plaquenil Tabs - we'll have to wait and see if works on me. I sure hope so. Yes, OLP is one of the worst auto immunine diseases that's for sure.

    Good Luck.

  • john71813
    john71813 donna18720

    Posted

    Hi

    I found gels useless. I use betnesol mouthwash. I now just crush the tablets rather than pre-disolving them (I take 2 x 0.5 mg twice daily) I hold it in for 10 mins and spit out thoroughly. There are cell surface receptors that should grab on to it and take it down to the nucleus, so maybe that's why it seems to work even if I spit out thoroughly. For individual ulcers I find keeping a H&B green tea tablet up against them till it starts disintegrating helps a lot. Used twice a day for a couple of days it sorts ulcers that I would in the past have expected to last a month or so. I started this (also taking them by mouth) after reading a medical hypothesis paper that suggested green tea on the basis of either inhibiting the enzymes involved in breaking down the tissues, or inhibiting the immune T-cell activation.

    • linda32054
      linda32054 john71813

      Posted

      Never have tried betnesol tablets. I'll have to ask for those in the future if the Plaquenil doesn't work. Also never heard of the green tea tablets. Where do you get those? I'd be interested in trying them. 

       

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