on a downward roll

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HI, I haven't been on this site for a while and previously I had active Epstein Barr, the virus is no longer active but it has left me with ME/CFS. I am now almost 4 years into a life mostly revolving around my bed. I experience high levels of PEM and fatigue my life quality has radically changed. The only way I can avoid fatigue crashes is to remain in bed all day. I'm in Australia and currently going through the gruelling process of claims with insurance, government funding financially and for support helpers. This takes most of what little energy I have. I would not have believed this could happen to me a few years ago and now the active, life filled person I was is a missing person from life. I do have days where I'm grateful and other days where I'm wondering what on earth is this all about. I find connecting with others like me is the only way to remain sane some days as able bodied people, even the ones closest just don't fully understand. I have a supportive GP but he doesn't fully understand. Thanks for reading my rant

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