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On again, off again Ovarian Cysts.

Posted , 7 users are following.

kelsx
kelsx

I am just looking for some kind of knowledge. I have had pretty large cysts on and off for the last six years (they always rupture, and that's how I find out I have them....lots of trips to the ER) I was wondering how many times is normal for this to happen? I can't get a straight answer, and everytime I ask my doctor he says ''watchful waiting''. Well not two months later I'm back in the same postion. Again, I get ''watchful waiting''. They hurt so bad most of the time I think I'm having a miscarriage or in active labor. I don't know where else to turn. Is there any advice or knowledge on how or what I could do? Thanks.

0 likes, 11 replies

11 Replies

  • dizzylizzie
    dizzylizzie kelsx

    Posted

    Can you ask to see a different Dr? Maybe get a second opinion, keep pushing your health is important. Hope things get better for you.
    • kelsx
      kelsx dizzylizzie

      Posted

      Thank you, I've talked to 3 different doctors in the past two years, and of course it's at different times when it has happened, and they all start me over at the same place. 'watchful waiting' I didn't know how many big ovarin cyst ruptures are ''normal''
    • dizzylizzie
      dizzylizzie kelsx

      Posted

      Have you kept a record of dates for each one? I have found the only way to get answers is to keep asking and present at Drs with questions and details and ask them how long this should go on before they will treat rather than watch? 
    • kelsx
      kelsx dizzylizzie

      Posted

      Yes, I did. They just keep telling me the same thing over and over. Is there anyone else who has had several recurring ruptured ovarin cysts?
    • dizzylizzie
      dizzylizzie kelsx

      Posted

      So frustrating for you, I do hope someone listens to you soon, not something  all Drs are good at
  • debb123
    debb123 kelsx

    Posted

    Remove the ovary. Is about the only cure. Thats what it think. Good luck. Hope you feel better soon. 
    • kelsx
      kelsx debb123

      Posted

      Thanks, Debb.

      I've been trying to get pregnant for over a year. I guess this has become a major problem.

  • Tazchurch
    Tazchurch kelsx

    Posted

    Unfortunatly certain types of cyst are cyclical. Hence watchful waiting as this type will generally resolve itself in three cycles. This tells me that a menstrating woman could have one a month.
    • kelsx
      kelsx Tazchurch

      Posted

      I completly undesrtand there could be one a month, but painful like that? I didn't know that. Thanks smile
    • Tazchurch
      Tazchurch kelsx

      Posted

      There are many nerves in this area and if it is in the wrong place then, no matter what the size, it will cause pain, even seemingly unrelated pain eg in the shoulder or shoulder blade, in either breast and a number of other places as well.
  • sally137
    sally137 kelsx

    Posted

    Hi, my first ovarian cyst ruptured when I was 17, most woman develope cysts during their natural cycle roughly around the time of ovulation due to the hormone changes.. And most burst causing little or no problem...Some women can feel them when they have them,others are unaware,the problem occurs when they don't burst and grow larger.. I had septicaemia from the first one as it was fairly large when it ruptured...I have had numerous operations to remove them via laprascopes plus reconstructive surgery to unblock tubes when trying to conceive.. Ten years ago I had my right ovary and tube removed..I had Ivf unsuccessfully 8 years ago. I now have a complex cyst of.2.5x2.7x5.8 cm they can no longer see my ovary on the left. Because of the tubular shape it is believed it is in the Fallopian tube as I have a fully blocked tube now. Hydrosalpinx.  Problem is I have adhesions from the surgeries I have  had to have.. Last year on a charity walk my stomach swelled so bad I could hardly walk this is when they discovered this complex cyst. As I was 43 at the time time I thought the time had come to have a radical hysterectomy...but be warned the more surgeries you have the worse the problem later.. I always presented at A&E and to me these surgeries I had no choice in...now I am in a position where no doctor will operate as the will not only have to remove my tube ovary but also my bowel..so at the age of 44 when I should be in the peak of my life I am in constant pain limited in everything I do.so please try to find a treatment other than surgery to deal with your cysts. I hope you are lucky enough to find a doctor who can allieviate your fears and help. Kind regards Sally
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