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On blood thinners for PE horrible cramps

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briPE2017
briPE2017

Hi all, I’m new to the PE world. My name is bri and I am 22, I was diagnosed with bilateral pulmonary emboli on my 22nd birthday in July 2017. I was on birth control viorelle and am now on xarelto. My cycle is irregular (just went 4 months without a period) and originally got on birth control for the cramps however now I am unable to take any hormonal contraceptives. How do I Alieviate the pain from cramps while on blood thinners? This will be a constant battle for me for a while SOS

0 likes, 2 replies

2 Replies

  • peter54321
    peter54321 briPE2017

    Posted

    Hi Bri,

    Sorry to hear you are having problems post PE. Afraid I can't comment on your PE causes or some of your issues (wrong sex), but I can give my experiences of blood thinners.

    I was initially put on warfarin and seemed ok, then switched to Xarelto as it was considered more modern and easier to manage. After a week or two, I started to get pain in joints and neck, headaches and bleeding. This got worse and worse until I was unable to function and the bleeding was pretty bad. Thankfully, my specialist took me off xarelto immediately and, after less than two days, most of the problems had gone.

    A couple if other people on here had heavy bleeding on Xarelto (nosebleeds I think) that was fixed when switched to another.

    Maybe worth trying another anticoagulant?  The one that seems to have the least side effects seems to be Apaxiban (sp).

    All the best

    Peter

  • shauna23219
    shauna23219 briPE2017

    Posted

    Hey there I had the same  problem I had a pulmonary embolism last December from birth control but I was 28 and I have had really bad periods Since I was 13 I mean nausea headaches extreme cramping I  used to puke  because of the pain and the nausea  so I got on birth control and it helped It all like a miracle  well just like you I am now not allowed back on birth control  Now I suffer from nausea the headaches the very painful cramps and all I can tell you is you have to suffer through it take Tylenol I was only allowed to take Tylenol on Xarelto I was on Xarelto to I mean you can take other stuff but they don’t want you to take like Advil Or  NA SIDs when you’re on Xarelto So I stuck to Tylenol and heating compresses and I have a nausea pill I take when I get my periods but it doesn’t help much I have always been regular tho 
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