On my last leg

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Hi, 

I have been diagnosed with severe form of gastroparesis.   I have literally tried everything medicine, all liquids which is what I’m on now.  I am still extremely sick.  I am severely anemic and vitamin deficient .  When I throw up or have a bowel movement it is like fireballs coming out. Nothing helps. I was supposed to have surgery but my insurance came back and said that I’m not covered for that and they won’t cover me even though it is medically necessary. I have notes from  all of my doctors saying how critical it is that I have it.  So I just do not know what to do because my body is declining very rapidly.  If someone has any good ideas please let me know.   Thanks!!!

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9 Replies

  • Posted

    Hi, I don’t struggle with what you have (only diagnosed with gallstones, I’m 16) but there’s a YouTube channel I follow who deals with severe gastroparesis and other illnesses. Her name is Chronically Jaquie and something on her channel may offer you some guidance on what to do. 

    If I may ask, what were your symptoms before getting diagnosed? I know I only have gallstones and have had no other major testing besides blood tests and an ultrasound, but I still have a big fear of having gastroparesis. Besides that, I hope you get to have your surgery soon. Feeling awful everyday is no way to live. 

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    • Posted

      Hi,

      Thank you for  advice .  In answer to your other question my first Symptoms were extreme nausea and pain that just never went away.  Then I started vomiting anything and everything it did not matter what it was.  Then I started having  severe diarrhea and I also noticed that every time I throw up or had diarrhea it was like fireballs and it never goes away.  Those are some of my main  symptoms and worst but the list goes on forever.

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    • Posted

      Thank you for telling me. I hope you get the surgery you need soon so that hopefully you can find some relief.
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    • Posted

      Thanks   The surgery not so much about  relief any more it’s about survival now.  I hope I helped because no one ever deserves to feel like this or live this way.
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  • Posted

    Can you change your insurance company?
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    • Posted

      I wish it worked like that but no unfortunately I can’t .  I am on my dads insurance until I finish getting my  doctorate.  I did however look into that but no insurance company will touch me because of my health. Well at least the ones that I need that would cover the  kind of surgery I need .  But I appreciate the thought.  Thank you 
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    • Posted

      Would your dad be able to pay for your surgery?  In Great Britain we have a free NHS and private care too.  On occasion, I have opted for private care and my dad has paid for it.  Since you are desparate, you could always ask him.
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    • Posted

      No unfortunately he can’t.  I wish he had 50 to 100 grand laying around but unfortunately he doesn’t.  
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