On my own?
Posted , 5 users are following.
Hello all, I was being treated for asthma for eleven years with no improvement, after a visit to my GP two years ago I was given at last an apointment with a thoracic specialist, after blowing into the machine three times he told me I did not have asthma to my surprise and after a CT scan confirmed I had Bronchi.
Sputum sample indicated I had infection and I've had infections and atbiotics on and off like everyone else.I have never seen a physio or been told about P/drainage or how to clear my chest, I had to find out for myself from this group etc. I have no sprays or any other medication to help. I used to put a sputum sample in to my surgery and receive antibiotics accordingly, however following a telephone discusion with My GP she asked me how I felt and I said I feel well so she has stoped my antibiotic so basicaly I have to live with my chest infection as long as I feel ok and if I feel unwell to go back to the surgery, so my question is am I on my own i.e. receiving no treatment etc yet stil have an infection???
Many thank's.
2 likes, 5 replies
david_25160 John1129
Posted
Operalyn John1129
Posted
I am a bit concerned about the lack of support you have. I not only see a specialist twice a year but also attend my GP practice for an annual checkup with the Nurse practitioner who specialises in COPD.
If you have a good GP it might be an idea to book a long appointment and have a chat about any concerns you have. Just a thought.
Cheers and good luck!
Operalyn John1129
Posted
Lots of us have a combination of asthma and bronchiectasis which at one time was considered unlikely if not impossible!
I also wanted to mention that it can be a good idea to keep dairy products to a minimum as they can increase mucus. ...doubtless I will think of something else in a minute!
dancing_queen John1129
Posted
No, you are not on your own. I feel like I've been left to one side. Because I hadn't had more than two infections in a year for two years I was discharged from the hospital. Although they said at any time an infection lasted more than two weeks to get in touch with them, as it was another two years, when I was ill last October I got in touch with the hospital only to find out that I would have to go to my GP to get a referral and start the process all over again. I have had four sets of antibiotics since then and still no referral. I don't feel ill now but I know I am not at my best. As and when I need more antibiotics I shall request a referral back to the hospital. So yes, in my case it is quite normal not to have treatment.
murphs John1129
Posted
Like you, I had not heard of this P/drainage until I started reading this group dialogue. I don't know how to do it either. Right now I'm on a nasal spray, steroid inhaler, and allergy pills. I make myself drink tons of water to clear out my lungs. It helps. I also try to excercise, most of the time.
It seems odd that you have an infection and they are not treating itl I would call doc again.
It's nice having this group. I had never heard of bronchiectasis and don't know anyone with it besides this group.
Good luck to you!