One and half years after bulbar urethrotomy and still absolutely miserable

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Need some advice fellow stricture people. A year and a half and two urethrograms after urethrotomy severely depressed and hating life not to mention my doctor who performed the surgery.

Every day all day long since that surgery I've experienced burning, itching, painful urethra from the tip deep into the bulbar urethra. It hurts 24/7 and worse when I'm urinating. It feels like my penile urethra is closing up. The underside of my penis turns red especially right after urinating and its sore to the touch all the time. The longer I stand the more it bothers me and I stand for ten hour shifts at work every night. I had to switch to briefs because the rubbing on my boxers is to painfull.

My last x-ray was six months ago. At that time the doctor said the anterior/penile urethra looked ok even though I could Cleary see it was much thinner than the bulbar section. It feels even tighter recently. What do I do next? I can't keep having urethrograms every six month, but that's exactly what they will want to do if I go back to the doctors.

I had a simple procedure to widen out a short bulbar stricture that caused me no discomfort and now my entire urethra is destroyed.

They won't give me pain pills and I can't take it any longer. Can anybody relate to this? Any suggestions?

0 likes, 11 replies

Report

11 Replies

  • Posted

    Good morning. I'm sorry for your pain.  You do not say how old are you and and how many cuts they did to open the stricture.  Maybe a dilation would have been better.  That is what my urologist and I have talked about when he found out I have one in the same area.  Got it from kidney stone surgery.  My stricture is fine right now aI have it checked every 3 or 4 months to make sure it ok.  What about a urethroplasty.  If that is the way to go I would have the one with the graft not the end to end.  The next thing you should do if this doctor does not what to help you is try another urologist. Don;t go back to that doctor.  Get someone that cares about you  Ken   

    Report
    • Posted

      Hi Ken

      Well he did several cuts. My first urethrotomy was 13 yrs. Prior to this one and they only did one cut then. But yeah there were actually two short strictures about a cm apart and he did 2 cuts in one and 3 in the other. And I've been to a couple different urologists since then. I think maybe all that cutting left me with inflamation and infection damaging the rest of my urethra that is slowly scaring now also.

      Report
  • Posted

    Hi, I completely emphase with you kdawg2791.  I am in exactly the same situation.  I had a urethral stricture dilated and am now unable to sleep, am in constant discomfort and I think my prostate has been inflamed.  I've been like this for 6 months.

    I've been on every drug under the sun in the last 6 months and nothing has helped.  I am due to have another cystoscopy to try and understand why I am in so much discomfort.

    Report
    • Posted

      Good morning

      Where is your stricture located? And what kind of meds did they give you for pain? I am very curious to hear what they find its just too bad they have to go in there again to find out. Those cystocopies can be quite invasive although they always tell you they're perfectly safe.

      Report
    • Posted

      I am told my stricture is in the Bulbar but I never had proper imaging prior to initial diagnosis ... I saw a cow boy who just took my cash and dilated my penis.
      Report
    • Posted

      I had another scope last July. Doctor still says not absolutely necessary to have surgery at that time, but come back in a year for flow test. He told me to see a pain specialist in the meantime. He's says maybe pelvic floor distinction. I respectfully disagree though.

      Report
  • Posted

    Hey guys 

    I've been seeing a lot of people talking about their urethra being damaged after dilation. I have a question. Wouldn't it be the case that (eventually) the urethra would heal? Is the urethra not the same as any other part of the body, ie it has an ability to heal? I'm not talking about the stricture, I'm talking about the pain, burning and inflammation. 

    Reason I am asking is because I had an injury (not from dilation), there is some stricture but urinating is not an issue.

    Pain however has been there for a few months. It has improved but not completely gone.

    So my question is, if left alone for long enough, would it be reasonable to think the injury would heal?

    Thank you 

    Report
    • Posted

      Yes the urethra does heal just like anything else, but just like everything else it leaves scaring (stricture) behind and that's what blocks your stream. Inflamation can leave scaring behind and the reason it takes a long time to heal is because we're constantly peeing through it. Where is your stricture? was your doctor able to pass a scope through it?

      Report
    • Posted

      Thanks for the reply.

      I injured myself through stretching my flaccid penis about 7 months ago, then (due to an issue with compulsive masturbation) not giving it enough time to heal.

      I feel there is some scar tissue just under the head, and urine has splayed in different directions many times. There is no trouble voiding though.

      After reading a lot of the posts, I do not want anything to go near my urethra.

      I felt some structural damage in the last few months, but due to improved abstinence, basically stopping coffee, and cranberry/Ural, I feel structurally my urethra has healed quite a bit.

      The problem is, I feel a burning pain, generally a couple of days after any sexual activity.

      These symptoms are very similar to people with urethral syndrome, or a UTI. I'm wondering if that pain is more an infection than any structural damage.

      Report
    • Posted

      The only way to know is to go to the doctor and have your urine tested. You don't have to have a cystoscopy if your voiding ok I wouldn't chance it.

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up