One and half years after bulbar urethrotomy and still absolutely miserable
Posted , 5 users are following.
Need some advice fellow stricture people. A year and a half and two urethrograms after urethrotomy severely depressed and hating life not to mention my doctor who performed the surgery.
Every day all day long since that surgery I've experienced burning, itching, painful urethra from the tip deep into the bulbar urethra. It hurts 24/7 and worse when I'm urinating. It feels like my penile urethra is closing up. The underside of my penis turns red especially right after urinating and its sore to the touch all the time. The longer I stand the more it bothers me and I stand for ten hour shifts at work every night. I had to switch to briefs because the rubbing on my boxers is to painfull.
My last x-ray was six months ago. At that time the doctor said the anterior/penile urethra looked ok even though I could Cleary see it was much thinner than the bulbar section. It feels even tighter recently. What do I do next? I can't keep having urethrograms every six month, but that's exactly what they will want to do if I go back to the doctors.
I had a simple procedure to widen out a short bulbar stricture that caused me no discomfort and now my entire urethra is destroyed.
They won't give me pain pills and I can't take it any longer. Can anybody relate to this? Any suggestions?
0 likes, 11 replies
kenneth1955 kdawg2791
Posted
Good morning. I'm sorry for your pain. You do not say how old are you and and how many cuts they did to open the stricture. Maybe a dilation would have been better. That is what my urologist and I have talked about when he found out I have one in the same area. Got it from kidney stone surgery. My stricture is fine right now aI have it checked every 3 or 4 months to make sure it ok. What about a urethroplasty. If that is the way to go I would have the one with the graft not the end to end. The next thing you should do if this doctor does not what to help you is try another urologist. Don;t go back to that doctor. Get someone that cares about you Ken
kdawg2791 kenneth1955
Posted
Hi Ken
Well he did several cuts. My first urethrotomy was 13 yrs. Prior to this one and they only did one cut then. But yeah there were actually two short strictures about a cm apart and he did 2 cuts in one and 3 in the other. And I've been to a couple different urologists since then. I think maybe all that cutting left me with inflamation and infection damaging the rest of my urethra that is slowly scaring now also.
AnonStricture kdawg2791
Posted
Hi, I completely emphase with you kdawg2791. I am in exactly the same situation. I had a urethral stricture dilated and am now unable to sleep, am in constant discomfort and I think my prostate has been inflamed. I've been like this for 6 months.
I've been on every drug under the sun in the last 6 months and nothing has helped. I am due to have another cystoscopy to try and understand why I am in so much discomfort.
kdawg2791 AnonStricture
Posted
Good morning
Where is your stricture located? And what kind of meds did they give you for pain? I am very curious to hear what they find its just too bad they have to go in there again to find out. Those cystocopies can be quite invasive although they always tell you they're perfectly safe.
AnonStricture kdawg2791
Posted
AnonStricture kdawg2791
Posted
kdawg2791 AnonStricture
Posted
I had another scope last July. Doctor still says not absolutely necessary to have surgery at that time, but come back in a year for flow test. He told me to see a pain specialist in the meantime. He's says maybe pelvic floor distinction. I respectfully disagree though.
rohan29030 kdawg2791
Posted
Hey guys
I've been seeing a lot of people talking about their urethra being damaged after dilation. I have a question. Wouldn't it be the case that (eventually) the urethra would heal? Is the urethra not the same as any other part of the body, ie it has an ability to heal? I'm not talking about the stricture, I'm talking about the pain, burning and inflammation.
Reason I am asking is because I had an injury (not from dilation), there is some stricture but urinating is not an issue.
Pain however has been there for a few months. It has improved but not completely gone.
So my question is, if left alone for long enough, would it be reasonable to think the injury would heal?
Thank you
kdawg2791 rohan29030
Posted
Yes the urethra does heal just like anything else, but just like everything else it leaves scaring (stricture) behind and that's what blocks your stream. Inflamation can leave scaring behind and the reason it takes a long time to heal is because we're constantly peeing through it. Where is your stricture? was your doctor able to pass a scope through it?
rohan29030 kdawg2791
Posted
Thanks for the reply.
I injured myself through stretching my flaccid penis about 7 months ago, then (due to an issue with compulsive masturbation) not giving it enough time to heal.
I feel there is some scar tissue just under the head, and urine has splayed in different directions many times. There is no trouble voiding though.
After reading a lot of the posts, I do not want anything to go near my urethra.
I felt some structural damage in the last few months, but due to improved abstinence, basically stopping coffee, and cranberry/Ural, I feel structurally my urethra has healed quite a bit.
The problem is, I feel a burning pain, generally a couple of days after any sexual activity.
These symptoms are very similar to people with urethral syndrome, or a UTI. I'm wondering if that pain is more an infection than any structural damage.
kdawg2791 rohan29030
Posted
The only way to know is to go to the doctor and have your urine tested. You don't have to have a cystoscopy if your voiding ok I wouldn't chance it.