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One of the things i hate the most...

Posted , 10 users are following.

melissa0
melissa0

Is constantly being reminded that something is wrong. Does anyone else feel this way? Twice a day I have to apply ointment and when I do I look in a mirror and see what is dysfuctional with myself. I hate that I am in fear every time I have to apply ointment. I never know what I will see. Does clob stop progression?

1 like, 16 replies

16 Replies

  • christine94142
    christine94142 melissa0

    Posted

    yes i have felt this way for 15 yrs now and in the back of mind i remember that i havent had sex for thee years at allsad
  • helen99763
    helen99763 melissa0

    Posted

    First of all, most definitely clob does stop the profession of LS.  I feel as you do re the mirror and for two years looked often and felt depressed, also worried about condition worsening.  Then I changed that pattern.  Now I make sure to apply the clob twice a week. Wash with water and baking soda spray, moisturize wth coconut oil. Also take probiotics, eat healthy, lots of water, fresh air, walk,  etc. Period.  The condition has improved but also my state of mind.  If I vary from my routine, the LS symptoms return.  I am much happier not thinking about it all the time.
  • lee12629
    lee12629 melissa0

    Posted

    Oh I can so relate,I have confirmed Vaginal atrophy and maybe a mild case of LS.Everyday I am putting on an ointment,taking sitz baths or shower,ever conscious of how I feel down there each day.I have alot of symptoms,some days are good,others freak me out.It can consume a person and yes,I have looked down there so often I feel like a gynocoligist.
    • Jess1612
      Jess1612 lee12629

      Posted

      Hi Lee - can you tell me what your symptoms of vaginal atrophy are? I think I have this as well as LS.  I would be interested to know as it is all so confusing as to what is what! Thanks
  • Pollyanne
    Pollyanne melissa0

    Posted

    Yes, it is like a dripping tap, not overly serious but very annoying, even when it's not too bad you can't forget about it. I var between looking obsessively every day and trying to ignore it! Unfortunately it doesn't let you ignore it for long.

    Thank goodness for modern technology, attitudes, and this forum,, imagine suffering with this alone! You'd think you were a freak.

     

  • Guppy007
    Guppy007 melissa0

    Posted

    Melissa, how long have you been applying the cream twice a day? and how much longer do you have to continue with that, as after a while the norm is usually twice a week, and so that in itself should make you feel better.  I dont look at my Vjay every day now, I tend to look at it two or three times a week now that I have got in a good routine.  Feeling fearful all the time wont help LS if fact it could make you worse, as stress is a well know trigger.  With regard to progression, the Clob cream should halt and eradicate the white plaques of skin eventually.
    • melissa0
      melissa0 Guppy007

      Posted

      I am newly diagnosed so I am still getting used to the fact that I have LS.  My gyno gave me the diagnosis last Wednesday although I feel I have had it much longer.  I am to use the cream twice a day until I go back January 28th and we will reassess the situation then and go from there.  He did say I will eventually do 1 or 2 times per week.  I am just really freaked out about my fusing that I already have.  I am afraid it is going to keep getting worse.  He made it out like the cream will take care of everything but apparently that is not the case.  I also have vitiligo so I am completely white almost everywhere down there.  I am not sure what areas are vitiligo and what is LS.  I have a million questions and I am writing them down for the doctor.  I have made an appointment with a dermatologist and thankfully was able to get in today due to a cancellation.  I am just curious to see what her thoughts are on it and hoping she can answer some of my questions.   I am really confused still.  Some times I read something and feel like since I caught it at a young age (33) maybe I have hope of not fusing more but then I read other things and feel like it is out of my control. 
    • sandra01720
      sandra01720 melissa0

      Posted

      Let us know what your dermatologist says. We are seeking for answers too.
    • Guppy007
      Guppy007 melissa0

      Posted

      You should  list the question on here, to women that have, and deal with the disease every day.  Not wanting to make you feel upset, but many women have found that many Doctors, Gynos, Dermatologists etc, don't have the answers, some women have been misdiagnosed for years, not months, but years, and so while it is good to see these people you have to become your own advocate for this condition, read the older posts, and you will learn a lot.  Once you are in your stride, you will be fine, but there is no doubt that everyone feels overwhelmed at first, I know I did when first diagnosed, but its really not the end of the world once you get on top of it.
    • melissa0
      melissa0 sandra01720

      Posted

      Nothing new. She did do a biopsy which the gynecologist said we might do after my next appointment in January. So in some ways I am glad that is now done with. Although I almost passed out so that just added to the joyful day. smile
  • alistar
    alistar melissa0

    Posted

    I recently 'rediscovered I have LS as the first time I was diagnosed it was so downplayed that I didn't realize it was anything serious. I took the steroid cream as instructed and that was that. I honestly don't even know when that was, that's how downplayed it was (and I've had a change of doctors a couple of times). Anyway, I just rediscovered I have it because I was having some pain while having sex with my husband - I had had a baby back in April so wasn't sure if it was because of that? The gyno identified the LS (with some fusing) and that vulvar vestibulitis was giving me the pain. She prescribed the clob for 2 weeks and an estrogen cream for 3 months, and that I was to come back in 3 months for a check up. Well, my husband and I are moving to Vietnam at the end of January and finding my cat a home has been stressful...cue flare-up. I found a purple blood blister on my clit and was like whaaaat? Feeling so frustrated because why the heck would the gyno only prescribe the clob for a mere 2 weeks?? And not even mention that a flare-up was possible? They say to not use Google as a doctor but that's the only place I seem to be able to learn anything about this!

    But back to your point. I am trying so hard to stop the fear, but it's hard. I feel such embarassment and shame. I don't even know why? I'm super paranoid about more fusion and when I look at my vag I'm not even sure what I'm seeing as it's like what's a result of the LS? What's because of my giving birth and the episiotomy? It is getting worse? Is it getting better? This sucks.

    • lee12629
      lee12629 alistar

      Posted

      None of my doctors acted like it was anything either.Google can be a friend at times.
    • sandra01720
      sandra01720 alistar

      Posted

      Yesterday I noticed some possible structural damage from LS but I don't know if this is how I've looked naturally. When I asked my Gyno about my one inner labia being so much smaller than the other and if it's a result of LS, he said in a puzzled tone he doesn't think it's from LS. Now I notice other suspiciois issues with the structure of my labia minora. It's a horrible disease. I'm sometimes afraid to look at it in the mirror. Afraid of changes I might see.
    • samantha1970
      samantha1970 sandra01720

      Posted

      I looked at mine 3 days ago and it was minimal but there, then again this morning. Feel like I said goodbye today! 
    • Guppy007
      Guppy007 sandra01720

      Posted

       Sandra, your doctor's response to your enquiry makes my blood boil!  Of course its down to LS! and the worse of it is that it takes 5 minutes to do a little research online if he was unsure, but some doctors cannot even do that, its laziness in my view, not keeping up with medical matters, despite that fact that we are paying these doctors.  I have the same problem, one side of my inner labia is a lot shorter than the other.
    • sandra01720
      sandra01720 Guppy007

      Posted

      Most of what I've learned about LS is on this forum. I did online research early on but I have health anxiety issues for many years and it just fueled my anxiety. I'm SO greatful for this site. It's a very lonely embarrassing disease.
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