Ongoing fatigue
Posted , 15 users are following.
I just have no energy and motivation. Is this typical? I thought since I am pretty much pain free, I'd be back to "normal" whatever that is! I have entire weekends lately where I do next to nothing and just spend days laying around on the couch. This is especially true if I exert myself even a bit!
I've been treated for PMR for several months now and down to 7 mg prednisone. I started a year and a half ago and responded to the prednisone but started to be symptomatic as around 7 mg and the rheumy decided it couldn't be PMR. He decided I had fibromyalgia which made no sense at all! I argued, but he wouldn't listen and took me completely off prednisone. After months of considerable pain and suffering with nothing to help but naproxin, I changed rheumatologists. I could barely walk when I went to the new rheumy and fortunately she got it right and I'm on my way.
I am miserable that I cannot get going on housework or anything else without just being entirely wiped out! I get depressed because of this or maybe I am depressed and then get fatigued? Not sure about much anymore.
Thanks for your sharing your thoughts and experiences!
1 like, 37 replies
ptolemy Sjohn
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Sjohn ptolemy
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ptolemy Sjohn
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Sjohn
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ptolemy Sjohn
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Danrower Sjohn
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There were many days I couldn't even finish cleaning kitchen.
I take it you're in USA. East central Florida here.
tony80950 Danrower
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Sjohn Danrower
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tavidu Sjohn
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Sjohn tavidu
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ptolemy Sjohn
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Sjohn ptolemy
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judytal Sjohn
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OMG I wanted to jump into the computer. I hear you, I hear you.... I've had PMR for 14 months. Fatigue, depression and more fatigue were my biggest challenges. However, it is getting better slowly. I'm down to 2mg and constantly heard from physicians to reduce reduce and reduce..... I've been following the Dead Slow program... I sent the physicians a copy...
I have two dogs and they wonder why they don't go on their long walks any more. Forget the housework.... I do get the bathroom cleaned but it takes hours now where it used to take days. I used to have to lie down when I finished taking a shower... better now.
I'm truly sorry you have suffered and feel so badly and your physician did not do his job.... good for you to change .... I did too however the new one was just as bad.... don't know what's wrong with these people. Do they really think we want to be on , of all drugs, Predinsone !!!!
Ok, hang in there it will get better.
judy
Sjohn judytal
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tony80950 Sjohn
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Sjohn tony80950
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tony80950 Sjohn
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Sjohn tony80950
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Anhaga tony80950
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Sjohn Anhaga
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