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Ongoing issues, help!

Posted , 4 users are following.

AnonStricture
AnonStricture

Dear All,

I posted a few months ago regarding my urethral dilation which I had late last year.

Nearly three months on my life is still difficult. I have a constant burning in my urethra, the rawness of the stricture site makes me feel like I constantly need the loo, it doesn't seem to be healing at all.

The original urologist has discharged me and suggested I get a second opinion. Second opinion says I should wait as it could be delayed healing and putting a scope in may make it worse. If no further forward in June they suggest a flexi cystoscopy.

I am now on 20mg of amitriptyline daily and have gone from sleeping all night to waking 4 times for the loo. I feel like things are getting progressively worse, I have bladder and back pain that I never had previously. I also have a sensation that something is stuck in my bottom which was never there before.

Apologies for the detail but does anyone have any suggestions to help me get back to normal. This is so unbearable.

Thanks

0 likes, 5 replies

5 Replies

  • glenn77
    glenn77 AnonStricture

    Posted

    Strictures are difficult to deal with.  Sometimes, they respond to dilation, but the odds are generally not good.  Urethroplasty seems to be the gold standard used after other options are exhausted.   I'm male and dealing with a stricture (maybe two strictures) which were the result of procedures I had done here in Greensboro, NC for my BPH condition.  For me, the outcome has been total incontinence for over a year now, and I'm seeing another doctor at a University hospital who will try another procedure (urethrotomy) to resolve the stricture(s).  If I can ever get the stricture issues resolved, I can have an artificial sphincter implanted to resolve the incontinence.   This urological merry-go-round is no fun at all.

    I assume you are in the UK from your use of "loo."   I know that here in the US, there is a specialty center at the University of California at Urvine (near Los Angeles) that does the surgery that has a high success rate for strictures.  

    They might be able to refer you do someone in the UK with that expertise.

    • AnonStricture
      AnonStricture glenn77

      Posted

      Thanks Glenn...

      My current issue is the severe burning following the procedure... my flow rate is normal ATM.

      I'm off to see a specialist in reconstruction this week with a view they can help me get to a conclusion.

    • robert02169
      robert02169 glenn77

      Posted

      GLENN TKU FOR SHARING-I AM A FELLOW AMER -GOOD TO HAVE SOMEONE ON THIS SIDE OF THE POND TO CONNECT WITH-LIKE U AFTER A NUMBER OF PROCEEDUERS TO DEAL WITH THE RESULTS OF RADIATION-AND THE TREATMENT AND THE INCONTIENCE THAT RESULTED AND MUCH DISCUSSION AND RESEARCH I HAVE OPTED FOR AN SPC -GETTING UP EIGHT TIMES A NITE IS A KILLER QUALITY OF LIFE TOUGH-SOME PERSONAL INFO-OTHERWISE A HEALTHY 75 YEAR OLD MALE NO MEDS --WILL BE POSTING MY EXPERIENCE AS I MOVE FWD--ANY THOUGHTS U MAY HAVE WILL BE GRTLY APPRECIATED -THK U BOB J
  • LKS
    LKS AnonStricture

    Posted

    Hey Dear,

    I faced this similar situatuon 6 months back.

    The problem is because of narrow stricture which is causing urine retention.

    And burning sensation is because of UTI which is caused by stricture.

    You will have to undergo urethotomy to get rid of this. But success rate of that is as low as 10 percent.

    Best thing would be to go for urethoplasty after consulting with your doctor.

    I mysely underwent urethotomy but recently my urine flow rate has declined.

    I think I will have to go for check up again to my doctor.

    Keep me posted about your updates.

  • AnonStricture
    AnonStricture

    Posted

    All, no further forward, still in pain daily and they/I have no idea why.

    I've completely lost any quality of life in the last 4 months and wish I had never listened to the surgeon.

    I am likely to seek legal advice if this doesn't resolve itself.

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