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Hi I've had TN diagosed sept 17 following intense headaches & burning pain (like shingles) randomly over scalp, facial bones, neck & left shoulder. I am on tegretol which gives moderate reflief, but makes me so tired & kind of foggy. I read somewhere that doctor should refer patients for mri after 6mths if symptoms still present - anyone else heard this? my main troublesome symptoms are really random intense headaches that last days & bad pain in my right shoulder particularly (like shingles burning pain not an ache) & i also get random "flashes" of pain in bones in faces, jaw, scalp, back of neck (not aches, like flashing stabbing or burning). I dont want to remain on tegretol long term because of the way it make me feel. Can anyone give me any advice, experience, or suggest what to do? Any comments, info welcomed. Thankyou x
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