Only bad days or worse days....

I was like you when I was first ill after having glandular fever and was practically bedridden for about a year. I've very slowly managed to improve a bit over a few years and am now at the stage where I can do things like go for a walk or do a bit shopping some days but other days I crash and have to rest all day (like today!). I set myself small goals like trying to walk to a lamp post and back then rested a few days then tried it again and gradually increased the number of lamp posts I went past. I also sit on benches when out if I'm getting tired to rest before I try to walk home again. If you are in bed most of the time you could set yourself small goals like circling your wrists and ankles, sit on the side of the bed or in a chair and raise your shoulders up and let them drop and do shoulder circles. Any movement at all, however small, would be good for you even though it's difficult at the time. Listening to guided meditations can be really helpful too as they allow your mind to rest as well as your body. Remember that mental activity especially if you're stressed or anxious can use in energy as well as physical activity. Focus on what you can do rather than what you can't do. If you are unable to read you could try listening to a book or podcast instead. Try and stay positive - I really hope things improve for you soon.

I understand you completely.  I am in year 17 and I am pretty much down  for the count all the time.  I may have a few good hours a day, but more got  have days where I do well to sit up.  

Before the illness I was a career ladder climbing Type A personality- then in one day I couldn’t walk.  Fatigue so unreal I can only compare it to coming out of major surgery.

I took early retirement, cut out all social activities and pulled inward.  The saddest part of my life is having family who thinks it is all in my head.

I finally have my husband somewhat understanding.  We watched the documentary Unrest on Netflix and he had finally seemed to understand.

My house is a mess, my paperwork orally disorganized, my once beautiful floral garden is now grown up. All my money is spent on trying whatever comes along.

Join the millions missing website...you will be floored when u find there are so many of us in this shape.

To All,

with chronic pain from me/cfs/fibromyalgia,

visit NHS Imperial College Healthcare website

and read work of DR Steven Humble, a recent TV prog

showed great improvement in patients via chronic pain management,

?contact no's/ e-mail address on website