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Hoping to get other women's experiences of their recovery post open myomectomy surgeries...
A little bit of background on my experience, I had an open myomectomy on 15th March 2019, 4 days after turning 30 and a large 10 inch pedunculated fibroid (attached to the uterus by an unusually large stalk) was removed. My symptoms from before the surgery have thank god disappeared as these were preventing me from living my normal day to day life (extreme fatigue to the point where I couldn't sit up without assistance let alone get out of the bed, abdominal pain, cramps, localised pain on the right side, nausea, headaches, loss of appetite, bloating) but I am still not recovered from the surgery itself, everything I have googled has suggested recovery takes about 6-8 weeks but I am now at week 12 and I definitely do not feel 100% better yet...
I haven't recovered as fast as expected according to my consultant, due to my age, size and general good health he thought I would recover quickly and has been surprised by my slower than average recovery. I left the hospital after 3 days in an insane amount of discomfort, barely able to shuffle let alone walk. I got home and don't think I left my home for another week, after this I tried going out but just making it to the steps outside was always too much and the stabbing pains would start, which I knew then meant I needed to lie down for a good hour or two. Walking more than 50 steps was really hard but this all gradually improved, it was really slow going, I didn't notice improvement day to day, only week to week I would be able to say 'ah this time last week I couldn't do that!'
At week 7 I gradually started to walk properly again and now walk on average about 6 miles per day, which is what I did before all of this started. I have also started running again (not very much, 2 miles maximum in one go) but think I might have over done it because I am feeling worse now than I did at week 8. After my last run, the next day I started to feel a mild discomfort on the right hand side where the fibroid was, then later in the day when I went for a walk I started to experience that stabbing pain inside and all over the front over my lower abdomen which I haven't had for at least 6 weeks (the kind which takes your breath away because its so sharp). In addition to this I now can just feel a constant discomfort on the right hand side which hasn't gone away 48 hours later. It is uncomfortable again to lie on my front, go to the loo, walk properly, cross my legs etc.
Has anyone else experienced this suddenly at this stage?
I am also still bloated and don't fit into any tight clothing and am starting to panic as I thought this would have gone down by now and have had to delay the date of my measurements for my wedding dress to later in the summer (getting married in 6 months time!). Does anyone have any advice for me to get back into shape, loose the 10lbs I have gained since surgery and get a non bloated tummy again without overdoing it?
I guess my main questions are:
- Has anyone else experienced these pains nearly 3 months post surgery?
- Has anyone else experienced bloating still at week 12?
- How long has it taken others to get back to 100% normality? 2 months, 3 months, 6 months, a year?
- Does anyone have any tips to help with the process?
My consultant acted like this surgery was not a big deal at all, I now understand however, what he actually meant was that, for him it was a simple procedure but I did not grasp the enormity of the effect it would have on my life and the time it would take to recover. I wish I had been given some more guidance on what to expect before embarking on this journey.
I'd love to hear other womens experiences so I know I am not alone!
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