Open myomectomy coming up

Posted , 9 users are following.

Hi all

After months and months of waiting, and literally years of trying to get it all sorted, I have signed the surgery consent form for my open myomectomy! Was told by the specialist that the surgery should happen within the next three months. I have a 20cm diameter cluster of fibroids in the wall of my uterus. I'm pretty nervous/ scared of the procedure and recovery, I'm single and I live alone so I know it might be tough. Any advice or recommendations or personal stories would be so welcome!

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12 Replies

  • Posted

    Do not worry Myomectomy is best option for multiple fibroids. I had one 3 years ago to remove 32 fibroids. Prepare yourself physically and mentally and you will be fine. They normally say recovery is 6 weeks but if you are fit you normally start feeling stronger in week 3. Eat well and exercise moderately before and after your surgery and plan ahead as you will not be able to lift anything heavy like shopping. Above all look forward to being fibroid free and without the numerous problems fibroids bring., My only regret is not having the surgery earlier as the surgery has dramatically improved the quality of my life and i would recommend for anyone suffering with multiple fibroids. The surgery was much less frightening or complicated than i expected. Wishing you the best and do not fear., focus on a positive outcome.

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    • Posted

      Congratulations! Just a quick one did your fibroid grow back I understand with myomectomy. The changes of the fibroid growing back is high

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  • Posted

    Hi Mia

    Trust you are well. Please relax and stay calm and don't be nervous, I am someone who hate the hospital and I had to undergo the surgery. I had open myomectomy some times back and I am back to norm, what I did before was ask my doctor question and I told him all my fears and he always found ways to calm me. to be honest I left the hospital 3 days post OP and I was fine, the only challenge came days after discharge as I had been exposed to cold environment in the hospital, I had cough and flu and it was difficult due to my incision, Also don't be hard on yourself, I was always worried about me not eating and it weighed me down. Don't rush to be 100%, they say you should be up at 2 or 3 week depending on you but please don't rush or put pressure on yourself. Take it slow and recovery will be fine.

    since you stay alone I will give you few tips that helped me 1 deep clean your apartment before the surgery so that when you get back you don't have to stress about it. 2 Store food and fruits in your fridge 3 Get a bedside table if you don't have, it helped me a lot.

    Don't rush to walk upright and use your painkillers anytime you feel pain and if you feel anyhow call your doctor and ask questions.

    All the best.

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  • Posted

    Thank you all for the kind words. I'm exercising and eating well, though it's been difficult with the anaemia I've suffered from for two years. I am so looking forward to not feeling this painful heaviness in my abdomen anymore! It took such a long time to get my doctor to take me seriously, and in that time it's become a constant drain on my health.

    I'm finding planning for the surgery and making lists of things I might need to be very helpful mentally, so if you have any tips for things like pyjamas or snacks or anything let me know!

    Keep well everyone, so glad I found this forum 😃

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    • Posted

      Hi Mia,

      I did go with a night gown because I knew the incision area will be sore and the gown was helpful. I also went with chewing gum and a thick socks as it was very much needed in the hospital. I didn't go with any snack and the hospital provided food, I only asked my friend to get me juice as I needed fluid.

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  • Edited

    Hi Mia

    All the best with the surgery. I had mine I March 2019.

    I was given 6 weeks to be away from work but I took way longer than that to heal and that is fine because people are different same as our bodies. you won't feel pain while in theatre, the pain only comes after but you will be given pain tablets.

    #Buy peppermint tea for gas, it helps alot with bloating,bought mine at Clicks.

    #Buy anything with ginger,whether it's biscuits or sweets, it helps with nausea.

    #Drink lots of water to prevent bladder infection.

    #Have a laxative that will make you go to the toilet,the sooner you go the better. They will probably offer you one at the hospital but In case they don't then you will be sorted with the one you bought.

    PLEASE NOTE THE ABOVE ARE THE THINGS I WISH I KNEW BEFORE GOING FOR SURGERY. I suffered a lot after the surgery but I dont regret going through it.

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  • Posted

    This is the list from my myomectomy surgery 3 years ago.

    Large Pants done

    Loose clothing done

    Pads done

    Cushion done

    Mints done

    Water done

    t shirts done

    Slippers Done

    Prunes done

    Bible done

    flannel done

    Wipes done

    Toiletries done

    Notebook done

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  • Posted

    Im sorry to hear of your ailment. Be strong , you will be fine. You need someone around though. I had my own surgery on the 10th of December. I live alone and I thought I could do it myself but no, I couldnt. You need to give yourself to heal and that means you need help. Think right, look forward the quality of life you will have after the surgery. You got to plan ahead cos you won`t be able to do any heavy lifting. God bless you as you go through the procedure. FEAR IS false evidence appearing real. Merry Christmas.

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  • Posted

    Is there coverage for a visiting nurse? maybe one can stop by daily to make sure you are ok.

    They did this for my dad after surgery. I plan to do this if I choose surgery next year.


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  • Posted

    hello Mia,

    I had my open myomectomy in february this year to remove 25-30 fibriods, my incision was a c section, my ' smiling face' - I am not single, I do have a partner, no children, aged 44.. You would not be human if you were not nervous or anxious, I was, but I am 10 months post surgery, I did have two blood transfusions whilst in hospital , as you will loose a lot of blood, depending on size and number of fibriods.

    Have some support friends and family with you, after the procedure, you may be in hospital for a few days, so that they can monitor,you, start moving as soon as you are physically possible, to reduce the clotting in your system. To pass poo and urine is vital, to ensure your inside are working and functioning ok.. the doctors will insist that this happens before you leave the hospital.

    Try and relax, if you fond yoga, and breathing these exercises arebgood to keep the blood pressure down and to relax you whilst you are there, NO ONE LIKES HOSPITALS! Wear loose clothing, bring a book, have your family and a friends with you..All what we ladies have typed here for you are valuable as we have gone through the procedure.

    I am glad i did this procedure, as my other choice to me was a hysterectomy, and early menopause, which I am not ready for, and maybe I have the smallest hope of conceiving now.. Stay blessed, Stay strong!!!

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  • Posted

    Thank you everyone for your kind words of encouragement, and all the good advice. I'll let you know how it goes, and what I wind up getting for the recovery. Hope you are all doing well.

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