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Open myomectomy surgery- what to expect

Posted , 2 users are following.

rajkk
rajkk

Hi everyone!

I'm due to have an open myomectomy to remove several fibroids (date TBC due to Covid) I've been suffering for several years now, and have had two hysteroscopies on the NHS. Unfortunately I had really bad consultants and these surgeries did nothing to help my condition. They were pushing for the coil or to remove my womb lining, but as I refused both (I want to have children in the future) I was discharged even though my bleeding and symptoms have been getting worse.

I'm fortunate enough to have private healthcare now, and this was the first time since I've been diagnosed that I had a MRI. My consultant then explained the extent of the fibroids and why the previous surgeries did nothing to help.

I'm recently married, 34 years old, and want to start a family with my husband in the next few years.

I wanted to reach out and ask about what to expect after the myomectomy.

I appreciate everyone's experiences will be different, but have your periods gone back to normal? currently i have a few days a month I don't bleed, otherwise I am bleeding heavily, passing clots and taking prescription painkillers to manage the pain. I have gained weight due to the fibroids and developed Telogen Effluvium (a form of alopecia) .

In your experience, and if any of you have suffered similar things to me, does this correct itself after the surgery? How long did it take for you to start walking around, the pain to calm down?

Apologies for the essay and thank you for taking the time to read it and reply 😃

0 likes, 2 replies

2 Replies

  • LandzM
    LandzM rajkk

    Edited

    hi there

    I'm so glad you are getting sorted.

    I had an open myomectomy in feb.

    I was forced to walk the next dayand did physio for the rest of the hospital stay. it's more of a shuffle then a walk.

    my periods get better and better every month.

    I wont lie this is a heavy op, it is painful and draining but it's worth it.

    Expect to be out of action for atleast 3 months. you will get better and better each day.

    I know people are different so others might heal quicker.

    5 months later and I am still not 100% esp now that it is winter this side but thankfully I am at home and taking this year to heal fully.

    all the best to you and keep us posted.

    • rajkk
      rajkk LandzM

      Posted

      Hello!

      Ah its a great feeling when you hear of other sufferers getting sorted too.

      As my surgery has been rescheduled due to Covid I have had a lot of free time to research and read up on other women's experiences, and 3 months seems to be the "normal" recovery time.

      I have also lost my job due to covid, but the timing works as I can focus on getting back to good health before looking for a new role.

      Were you ok with using stairs? My bedroom is on the first floor...

      Also, were you able to shower yourself or did you need help?

      As the date of the surgery is drawing closer I am getting nervous.

      Thank you! x

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