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Operation for LS...here we go...

Posted , 13 users are following.

LeahRSA
LeahRSA

Hi Everyone, sorry I have been so unavailable, I have literally been so busy...going from one appointment to the next, trying to fit in work and dealing with my young boys, sport, school etc so it has been a hectic few weeks to say the least...so since my last update on this discussion forum I have taken some seriously positive and proactive decisions about my LS...first I got a second opinion on it (and my endometreosis which has become unbearable), this gynae was amazing (Dr Kerry Sherwood), she was so caring and had already pre-booked appointments for me (as I asked the secretary to write LS next to my name in the appointment book) with a sexologist (Dr Ros Boa) and a vulva specialist (Dr Christine Dehaeck) so just one week after seeing her I saw these other lovely women Doctors today...it was a long invasive and exhausting 3 hours this afternoon and I am a little sore after my biopsy...but...I am so grateful for finally ditching my denial and getting answers...

Below is what I am going to have done...they have done 6 (only - eeek) patients in the last 3 1/2 years and all have been successful...the one women had not had sex for 10 years and now she is enjoying an active sex life with her partner! I aslo have to have a hysterectomy due to my severe endometriosis so that is booked for 29th May and hopefully fitting this procedure in between so that my 'undercarriage' can heal with both ops...it is only 30 mins under...shew! Feel like I am a runaway train writing this so I hope it is making sense...I will of course keep you all updated as to when it happens and all the ins and outs and hopefully a successful outcome!!!!!  Lots and lots of love to you all, Leah xXx

http://journals.lww.com/plasreconsurg/Fulltext/2010/10000/New_Surgical_Approach_to_Lichen_Sclerosus_of_the.73.aspx

Emis Moderator comment: I have removed the article that was pasted in full here as it breaches other website's copyright. Please do not paste whole articles in posts. You can add a link to it and this will be approved as long as it complies with rules for posting links. If it doesn't then links can be exchanged via the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

1 like, 16 replies

16 Replies

  • winifred02134
    winifred02134 LeahRSA

    Posted

    Hi Leah , just to say "good luck " it all sounds very positive and that you have good docters is brilliant ! Wishing you a speedy recovery . X
  • LeahRSA
    LeahRSA

    Posted

    Thanks for pasting link...sorry!
  • deb09833
    deb09833 LeahRSA

    Posted

    That sounds so positive - good luck with your op and thank you for sharing this. X
  • renee77108
    renee77108 LeahRSA

    Posted

    Good luck to you Leah.  Hopefully this will be an end to your LS and endometriosis. I'm having quite good luck so far with my natural remedies. Have been using the Manuka honey...and I believe it is working...haven't had to use my aloe in a few days now. Also am doing the paleo auto-immune diet as I also have oral ls.  I'm on day 5...of 6 weeks, but am determined to see it through. Will be very interested in your story once you are through everything. Take care!
  • dani2590
    dani2590 LeahRSA

    Posted

    Good luck Leah! Hoping it turns out to be a success.

    Renee - nice to hear you are having some success with the natural remedies. I've thought about Manuka Honey but my LS is right inside the labia minora, on either side of my urethra so I'm hesitant to put anything there incase I get some reaction. I only use olive oil or coconut oil to moisturize.

    • renee77108
      renee77108 dani2590

      Posted

      I had a bit of a sensation when I first started using it...but no bad reaction. I just use it at night with a pad as it's sticky. I was doubtful at first, but kept using it and the sensation went away as I started healing. I put it all over and things have greatly improved. I won't say I'm cured as it's not been long enough to tell. I will continue to use it until I'm confident. Aloe vera gel is also moisturizing and healing. If you get the itch, try it as it really helps calm it down.
    • renee77108
      renee77108 dani2590

      Posted

      As the honey is a natural healer...especially manuka honey...I'm sure it would not hurt you.  I also am on day 11 of the Paleo auto-immune diet. The LS on my legs has totally gone into remission...nothing but smooth skin. The LS in the private area is nearly gone. I had lost all sensitivity in that area...and that has all returned.  The witch hazel and aloe helped immensely...the manuka honey made further improvement and the diet I'm hoping will be the end of it. The auto-immune disease I have in my mouth can go into my eyes and cause blindness...the diet has improved my mouth about 35% so far...hoping it will continue to improve.  Made a couple of errors in the diet early on as I was learning it...so I'm sure that slowed things down a bit. Am now firmly on track. Isn't as difficult as I imagined.  Hard to give up foods that you have loved...but if your health is so seriously at stake...then it's something that must be done.
    • hanny32508
      hanny32508 renee77108

      Posted

      Good to hear about your continuous progress Renee.  May it continue to be so.
  • honeyduck74
    honeyduck74 LeahRSA

    Posted

    Wishing you the best of luck, will be thinking of you, please let us know how you get on, hope you have a speedy recovery

    Rachel :-)

  • Chrisy
    Chrisy LeahRSA

    Posted

    Good luck.  Speedy recovery,  Keep us updated please.
  • LeahRSA
    LeahRSA

    Posted

    Hi, I met the Plastic Surgeon yesterday and he explained that they not sure why it works but it does. In the process of 'spinning' about 150ml of fat and 20ml of blood the get out 'stem cell' like cells with regenerative properties & very rich plasma from the blood.

    They inject it in a series of small injections into the very deep skin (near the pelvic bones), just under the skin & into the slightly deeper layers of skin. What the inject in doesn't have its own blood supply but somehow (ghethe the part they don't really understand) the rich plasma combined with the 'stem cell' like cells blood vessels start to grow into these new cells & they start to have an impact on the skin...(turning back the clock to when the skin was normal).

    That is why lots of little bits of the spun formula is needed everywhere instead of a couple of big blobs injected in. It takes about 30 mins under general anaesthetic and just before I wake up I am given a local anaesthetic for the pain.

    3/4 months later they will hopefully see an improvement in the skin and more normal skin is there as opposed to LS skin. The 6 women they have done over the last 3 1/2 years have all been successful. It is not a once off fix. Depending onot the rate/degree of the LS some of them have been back for a 2nd treatment a year later and it clears up again or even more.

    I am going in for the operation on Tuesday 19th at midday. We still don't know if our Medical Aid will pay so we have released some money from our house bond...

    I will let you all know how it goes...see you on the flipside!!!

    Love Leah xoxo

    • renee77108
      renee77108 LeahRSA

      Posted

      Thinking of you and praying all goes well for you.
  • maria87278
    maria87278 LeahRSA

    Posted

    Best luck to you, dear!

    We are waiting impatiently to hear the news from you wink

  • LeahRSA
    LeahRSA

    Posted

    I hope it made sense the way I wrote it as I am no Doctor so I probably didn't use all the correct terminology...

    Quite nervous for tomorrow...not because my undercarriage is on display again to a variety of strangers (even if they are Doctors & Nurses)...at this rate I might as well put it on Broadway wink...at least 5 people have seen it in the last two weeks! I am also not nervous of the many injection puncture wounds into my sacred place but I am nervous of the outcome...I really hope this helps my LS as it would be such a game changer in my life...

    I will post as soon as I can after surgery and then continue to keep you informed also the next couple of months and see how it gets on... love Leah xoxo

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