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Hi my son was diagnosed with orafacial granulomatosis about a year ago and I haven't really been told much about it. When he first got diagnosed he was given steroid mouth wash for 3 months and then he was put on high dose of steroid tablets and was told not to drink fizzy drinks. He is now of the steroids and Is on azathioprine tablets. He's not been checked to see if he has chrons and not been given any information about what or not to eat. I would be great full if someone could give me some more information on this as my sons lips don't seem to stay down there just flare up all the time.
I would be very great flu for some feed back
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