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Oral Lichen Planus

Posted , 3 users are following.

heather18065
heather18065

Hi. I'm new to this site and wanting some advice please.

I have 3 of the autoimmune disorders which are Thyroid, Vitiligo and Lichen Planus.

I'm under the hospital yearly for Oral lichen planus but have suffered badly with it in the last few months with 4/5 days of very bad soreness so that it's difficult to eat without it being really painful.

Does anyone know what is best to tackle the soreness please? I have Beclometasone spray and used Difflam but neither is helping this time.

0 likes, 19 replies

19 Replies

  • mrsmop
    mrsmop heather18065

    Posted

    Hi Heather, have you read the leaflet on the British Assn of Dermatologists Website?  I have posted a link which is waiting to be moderated.

    Has the hospital given you an SOS number to call?  You need to see your Consultant.  Have they discussed oral steroids with you?

    There are several options but you need to see your Consultant.

     

    • heather18065
      heather18065 mrsmop

      Posted

      Hi Mrsmop. Thank you so much for your reply and I will look forward to receiving the link once it is moderated.

      The Consultant at the hospital always says "come back if you're worried" but of course you can't just turn up.

      Unfortunately I am on holiday this time I have it so bad or I could have maybe been seen this week at the hospital. I'm wondering if I should wait till it flares up again. Do you have it?

  • frances85589
    frances85589 heather18065

    Posted

    I have had lichen planus in mouth.think I was given a corticosteroid spray.wasn't too bad so did go away with treatment but if you in so much pain I would go back to doctor for something stronger.I know alot if things irritate like spicy foods etc.I don't smoke but that irritates it too

    • heather18065
      heather18065 frances85589

      Posted

      Thank you Frances. I have a spray which is used for Asthma, so I suppose it must contain steroid. It hasn't helped much last few times though.

      I'm thinking that returning to the hospital Consultant is the best option too.

      Thank you again for helpful comments.

  • mrsmop
    mrsmop heather18065

    Posted

    I have sent the link via a pm to you Heather
    • mrsmop
      mrsmop heather18065

      Posted

      I think you have found it now Heather, it says you have read it.

       

    • heather18065
      heather18065 mrsmop

      Posted

      I haven't received the link from British Assoc of Dermatologists?

    • mrsmop
      mrsmop heather18065

      Posted

      It's the top one in my message Heather, BAD stands for the British Assn of Dermatologists!

  • mandy77480
    mandy77480 heather18065

    Posted

    Hi Heather

    I understand how you are feeling, I have a number of conditions and

    recently been diagnosed with Lichen Planus.Oral & Skin, I have been given

    Prednisone soluble tablets to rinse and gargle with every day. I also

    have an inhaler which contains salbutamol & steriod .Betamethasone

    and Aveeno for skin.

    • heather18065
      heather18065 mandy77480

      Posted

      Hi Mandy

      Thank you for your reply. I am sorry to hear that you have this condition also as well as others.

      I have an inhaler but find it doesn't do much when the condition is really bad.

      However, that's interesting to know about the Prednisone, I will talk to the hospital Consultant about it.

      Take care and thank you again x

    • frances85589
      frances85589 mandy77480

      Posted

      That's interesting. I didn't know you could get soluble prednisolone .I take them orally.

    • mandy77480
      mandy77480 heather18065

      Posted

      Weight gain is one of the main side effects when taken orally.

      I'm already on lots of medication, so rinsing & gargle your mouth

      has helps with the inflammation without taking them.

      I also suffer with my sugar levels even though I'm not diabetic,I have

      autonomic neuropathy. I've been told to carry lucosade around

      with me and if I get the feeling my sugar level is dropping to

      swill my mouth out especially under my tongue. This will get into

      my system but I won't be having extra calories, like I would if I ate

      a chocolate bar for a quick hit.

    • frances85589
      frances85589 heather18065

      Posted

      I've been taking 10 mg prednisolone sInce 2012 but for different disease.no weight gain really.did a bit at start but not now

    • heather18065
      heather18065 frances85589

      Posted

      That's comforting to know and especially good for you Frances. Dealing with extra weight adds to the problem!

    • mrsmop
      mrsmop heather18065

      Posted

      I have also been taking Pred since 2011, in varying doses, maximum of 30mg/day.  Am now on 10mg/day  & though I have put on some weight, I don't have the moon face & haven't put on a huge amount.

      I also use Betamethasone soluble for my mouth, though I can't say it does anything for me.  

      I too have a different disease.

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