Oral Lichen Planus in child

Wendy, I've never heard of a TB connection.  I will look into it, though.  And you are right.  Why doesn't this get more attention and research?  It obviously affecks millions across the world.

Amber, my OLP started out as large ulcers in my mouth and lower area.  I had three breakouts in 2 months.  Now I have the white patches and swollen cheeks (probably because medication is keeping it at bay.)  I have had it off and on for five years but this latest outbreak is lasting two years.  I pray every day I will wake up with it gone.  I also have occasional breakouts of Erethema Nodosum-big red circles all over my body with fever.  Also considered autoimmune and no explanation of where or why I have it.  And I hate the herpes suggestion because now it is on my medical record and I NEVER had it!

I also did not know a child could get this, and I am so sorry your son is afflicted.  I can't imagine how a child could cope with what your son has had in his little life.  I am so sorry.    I am near Vanderbilt but my insurance would never pay for me to go there.  I hope Duke gives you some answers.  Your little boy is so brave.

Hi there, I was doing research on OLP as my daughter (12) was diagnosed back in November. I realize this post is a bit old but as I am sure you know there is not alot of literature on adolescent OLP. I live in Ontario Canada and have been trying so many different things to help my daughter with her outbreak. It actually started for us 9 months before November with a misdiagnosis of Thrush and she was put on Nystatin 4x a day for 6 months with zero improvement. It was then that we went to a pediatric diagnostic specialist at our children's hospital and got the confirmed OLP diagnosis. She was then put on a pretty severe medication called soriatane most commonly used to treat psariosis coupled with a topical steroid cream for her tongue. We have gone 5 months with little result. The medication has depleted her electrolytes? and experiences a lot of joint pain. Her specialist admitted at her last appointment that this is the first adolescent case he has ever seen in his 35 years of practice and wants to write it up as a case study, I am more concerned with helping her. I was wondering if this is still an ongoing issue for your son and if you have come across anything else that has worked for him. In my research I did become aware of topical steroids being the mainstay treatment and in some cases coupling it with an immunosuppressant therapy to keep her immune system from attacking the healthy cells in her mouth. I have just been at such a loss as to what to do next and no one here has any answers.

Hello, Amber

Have you tried giving him a probiotic?

Most if not all that are diagnosed with LP, OLP have had digestive issues myself included.

I have LP of the skin and started taking a probiotic and flaxseed oil about two months ago and I also take a allergy pill once a day to help block the allergic reaction caused by LP. All of these have helped.

Hi, everyone.  He just had his 12th birthday and he STILL has them.     He is fortunate that he has never had any skin lesions.  His is all systemic.  I was giving him Lysene ( my husband recommended) and I cannot tell any improvement.... although, to be fair, I haven't been consistent as I should be with it).  I tried probiotics for a while but that was a LONG time ago.  I need to try again!!  Thank you for that suggestion/reminder!  I'm thankful for this group chat and I'm SO SO SORRY you all are dealing with this.  It's horrible.  I know.  I see it in him.  He caught the stomach flu about two weeks ago and it was the most horrific thing I've ever seen.  He already has a weak stomach...... his pain was just terrible.  He missed almost 2 weeks of school. I worry SO MUCH about him and cancer.  As these sores keep coming, new skin regenerates...... which increases that cancer risk.  I'm Desperate for something to help him and CURE EVERYONE from this illness!