Oral Lichen Planus in the Esophagus

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So, I've been told I have OLP and have messaged a lot on this blog. I've had it since 2008 but just in last two years, finally got a diagnosis. Not by biopsy though it with a ENT looking at the lesions and saying yep, that's OLP. Since then, I had a deep root cleaning on teeth and since that time, my gums excessively bleed while brushing my teeth now. I'm told the red inflamed gums go with OLP and oral

Pathologists wants to now do a biopsy but of course my expensive dental insurance covers 46.87 out of the total cost of 1585.00 for the biopsy. I'm thinking instead of going the dental route, to switch back to the medical route because maybe a biopsy with my ENT will covered better and also with a Rheumatologist because the oral pathologist yesterday said they can run more extensive autoimmune test. Anyone here been told that? Also, has anyone been diagnosed with Esophagus Luchen Planus? I ask because in 2005, I started having what i was told at that time, Esophagus spasms associated with GERD which was why having pain but yet no did a upper GI on me to be sure. I'm just wondering if mine started in my esophagus and moved into my mouth. Also, has anyone been treated with oral steroids for the OLP because I was told that was an option but yet I'm concerned with the side effects.

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7 Replies

  • Posted

    I was diagnosed with this retched complaint 3 years ago. I was prescribed steroid mouth rinse which certainly reduced it's impact on my life.  However, I am never without a sore mouth which has resulted in my inability too gain weight. I now weigh 7 and a bit stone and am desperate to gain weight but have no appetite at all.  Try the steroids. It may give you some relief.  Good luck.

  • Posted

    Your story is interesting. It is somewhat  similar to mine. I've had 2 biopsies and will have a third in November. My report came back saying i have Lichenoid Stomatitis. Is that a definite OLP diagnosis? Don't know.  However, my oral surgeon thinks i have it. I had trouble swallowing starting a couple of years ago and had a upper endoscopy done to check for growths and nothing was found. My MD said i have Gerd and recommended i take over the counter Omeprasol. It did not help at all. I gave up soda and that helped somewhat. I think i have OLP in my esophagus and erosive OLP on sides of my tongue. It is painful to eat, brush my teeth, and swallow most solid food. I have found that when i'm stressed out it gets worse. Periostat has helped my gums so that they don't bleed anymore and brushing isn't as bad. I have not taken oral steroids (Prednisone). I don't want to take that unless i absolutely have to.  I have not been told anything about an autoimmune test. I would certainly be interested in that. Let us know if you get this done and what the results are. Also, Do you have arthritis

    • Posted

      Hi cookie27809

      Reading what you have sounds similar to me. I am a very stressed person and internalize it a lot and it seems it all started back in 2008 when economy took a dive and hit us really hard so I can see how stress can play a huge part. I just want a definitive diagnosis. I don't have arthritis, that I know of although I am starting to notice hip pain and pain in feet walking when get up in the middle of the night, so not sure. Every time I read up on OLP, I see it an autoimmune disorder but man there are so many and book test ordered by regular doctor didn't ask for all to be tested which i guess is why told the rheumatologist can check further and for inflammatory issues. It's just so frustrating because I'm sent to one doctor then they send me to another because no one seems to know what to do with me. Hope I get somewhere soon. I'll update once I get more information or tests. Thanks

    • Posted

      yes, i too internalize stress. I have anxiety at times also. Yes, 2008-2016 were lousy years!  I hope you get some answers from any tests you take....

      ckitefly, we're in the same boat....nobody knows how to fix or treat our problem...

      good luck, and stay in touch smile

  • Posted

    What about a dermatologist?  I am seeing one in August for a biopsy of a spot that won't heal on my chest. And I plan to ask her about my biopsy I need on my OLP. I haven't been able to come up with the money for the biopsy through my dentist and he won't do it without payment in full

    • Posted

      Hi Donna

      A dermatologist can see me for my mouth? Funny though because did go to one with a growth on my face and had it removed. It was skin cancer but not aggressive and at that time brought up my mouth and the doctor didn't seem to know what to do. It's like its rare and no one is educated on it here where I live in riverside county, Ca. I'll

      Call around and ask before I spend the money to see a doctor but then told they can't help me. That's the frustrating part and also costly.

  • Posted

    A dermatologist that also treats oral lichen planus is the physician you need and biopsy to confirm. Those that specialize are hard to find. The oral mucosal and lining internally are our internal skin. I have found it a frustrating disease and trial and error nutritionally. I stay away from processed meats, due to the sodium nitrates, wine due to sulphites and tannins, artificial sweeteners, chocolate, vinegar, onions, garlic, barley, sweet potatoes, white potatoes, legumes , spices, tomatoes, soy and soy products, mint, I use Desert Essence Natural Tea Tree and Neem toothpaste and their Tea Tree Oal Mouthwash, I drink lactose free whole milk, plain yogurt, rice, carrots, string beans, oatmeal and cream of wheat, chicken, lamb, fish and beef. When I deviate off I blister immediately. Painful horrible disease. Wish you well

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