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It began for me on February 2, 2015. My mouth hurt, Doctor after doctor told me I had thrush. After thousands of dollars spent....I was seen by a Dr. of internal medicine 3 times...8 vials of blood. An ear nose and throat Dr....an immunologist 3 times...8 vials of blood. A Dr. of infectious disease 3 times....4 vials of blood. NO answers. Meanwhile random rashes were appearing all over my body and my mouth continued to get worse. On June 8, 2015, I deciced ON MY OWN to see a dermatologist. I was diagnosed with Lichen Planus and Oral Lichen Planus. A biopsy confirmed it. I was first given a topical steroid to put on all my random rashes. I also had to put it in my mouth on the back of a spoon. 10 minutes a side and on my tongue and gums. My mouth continued to get worse. Next I was given high doses of Prednisone. 60mg. per day for a week....40mg. per day for a week and so on. My mouth continued to get worse. Yesterday I went back to the doctor....4 more vials of blood. She now wants me to take Plaquenil. 200mg. pills twice a day. I have not taken them yet. I am afraid to. The side effects are so scary! I have to get my eyes checked every 6 months. Can someone please help me? I know I am not dying but this disease is chipping away at me day by day
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