Oral Lichen Planus...sorry nothing we can do...are you kidding me....

I am currently doing the following:

- tea tree toothpaste

- tea tree lip balm

- high dose probiotic gargles and swallow

- Host Defense mushrooms

-aloe vera liquid

- zinc tablets

-Spry mouth spray and mints

I think mine was caused by 2 steroid shots in my spine in December for a neck issue, so am very leary of steroids and more anti-inflammatories, then did 3 rounds of antibiotics for a persistent sinus infection. drugs, drugs and more drugs. = killed my immunity. Clearly just my own assumptions as docs/dentists say .... stress. I like the theory of a candida relation as well. 

I've had Lichen Planus since July 2008 and the only thing that has stopped the sores is taking 6000 units of Vitamin D each day.  I take 3000 with breakfast and 3000 with dinner.  Since doing this last summer, the sores have stayed away.  Please give it a try.  It's an auto immune disorder and Vitamin D strengthens our auto immune system.

My Lichen Planus was diagnosed in Feb 2013.My whole body is covered in the typical discolorations and bumps.Told it has to run its course.Im still suffering with new ones appearing!I've given up on antihistamines,steroid creams and tablets and phototherapy.More research is needed for this condition!DEFINITELY!!

 

The only product that controls my Oral Lichen Planus is Triamcinolone Dental Paste, unfortunately it is not available from most pharmacies, and has to be prescribed by the GP, but I get it every month from my doctor, and then it is posted to me from Hard To Find Medicines, who get it for me. If I stop using it for more than a week it flares up again. I was given a mouthwash, but that didn't work, the paste is great, as it sticks really well to the inside of the mouth.

After my post, I left for 9 days in Costa Rica, not a single symptom of it while I was gone - ate and drank what I wanted etc.. stopped taking all but the zinc and pill form probiotic. We'll see what happens now that I am back home and not hanging out in paradise

I'm guessing your symptoms went away while you were in Costa Rica because you got some Vitamin D via the sunny weather?  I take 6000 units of Vitamin D every day and the sores have not come back.  I've been doing this for about a year now after suffering for 5 years.  I really credit the Vitamin D because it boosts our immune system and Lychen Planus is an auto immune disorder.

Avoid tomatoes and any tomato based sauces. Also strawberries, rasps, blueberries and pineapple . Anything acidic really. I also find chocolate seems to aggravate it . Possible anything really sugary is bad for it. Best toothpaste is Squigle which you can buy online . Very soothing.

Hi Kerry

If you go to the Lichen Sclerosus forum and look for the discussion "New ideas - prolonged fasting" you will find information about the fasting approach to rejuvenating one's immune system. It might help you.

The only product that I know can control Oral Lichen Planus effectively are Corticosteroids, which do not "Cure" the condition, but do suppress and control it. Soluble prednisolone or betamethasone tablets used as a mouthwash are often used (the cheapest option for NHS) more effective is Triamcinolone Oral Paste previously known as Adcortyl in Orabase, which will actually adhere to the lesions and produce a longer effect, plus there is probably a lower amount of systemic absorbtion and side effects from the paste. Triamcinolone Oral Paste is available from Hard To Find Medicines on NHS prescription. It is only available on prescription, it cannot be purchased. (Adcortyl in Orabase had a small OTC product available, but this has been discontinued, and the only available product is POM) So you will need to obtain a precription from your GP... I hope this info is of assistance. Good Luck.

Oddly enough, no symptoms since this last post and at the exact same time as last year my mouth is starting to flare again I believe my extreme seasonal allergies are to blame for this - they came on strong a week ago, I ate pineapple which I NEVER eat and salty chips the same day - that combined with severe drainage from my allergies has me stressing that the lesions are coming back. 

I went to an allergist today, who looked at me like I was crazy when I said I think it is related to my OLP, but am starting 2 nasal sprays to try to get the allergies back under control. Now I am worried because one has steroids and I worry about taking a lot of meds with this disease. Anyone else find any connections with their allergies? I am not feeling prepared to go through this again! I had put it out of my mind for the past year.