1. Community
  2. Skin and nails
  3. Lichen Planus

Oral Lichen Planus treatment

Posted , 6 users are following.

anne13482
anne13482

Done some on-line research + asked relatives in other countries how OLP is treated. Surprised by outcome. USA, India, Canada, Sweden & NZ -all cases are treated immediately on diagnosis with some form of steriod medication. In USA 4 dentists emailed my SinL that the sooner it was treated the better chance of effecting cure and stopping condition from increasing within buccal cavity. In mild cases complete cure can be effected within in 9-14 days. There can be a spontaneous relapse when meds stop, in which case, after a pause, treatment begins again. More or less same response from India too.The Consult here said he doesn't treat with anything and unless it spreads into oesphagus or down throat....... OK, what's everyone else told here? I am really confused about it now.My own OLP has spread totally throughout my mouth now to lips and seems to be going down back of my throat too. Perhaps if I had had treatment when it was only on inner cheeks...... I really don't know what to think. What, if anything, is anyone else being treated with and is it effective to any degree?

0 likes, 7 replies

7 Replies

  • Neena6
    Neena6 anne13482

    Posted

    Can I ask how you know it's in your throat. I think mine is spreading as well...sadly?

    • anne13482
      anne13482 Neena6

      Posted

      Hi Neena,

      My entire mouth cavity is badly affected and quite sore. Even the inside tendons that enable opening and closing mouth are raw and red. I have started continually coughing with the irritation. When I shine a torch in my mouth there is no visible clear area at all. Everything is either lacy white or red raw.

      I also have thickened saliva which is a sign of dry mouth syndrome and, I think possibly, sjorgen

      syndrome.

      I do hope, that unlike me, you are getting some treatment and that will maybe help.

      Anne.

  • Guest
    Guest anne13482

    Posted

    Hi,

    My doctor started treating me immediately with a steroid oral rinse called Betamethasone. It hasn't cured my OLP but it controls the symptoms pretty well. I use the rinse 2-4 times a day.

    I'm also affected on my skin and VLP, but again, immediate treatment with steroid creams is managing the symptoms pretty well.

    I think the sooner you treat the symptoms, the less chance the condition gets out of control.

    Good luck, I hope you get sorted soon.

  • anne13482
    anne13482

    Posted

    Thanks, Kim.

    Both my sisters have had LP. The eldest had OLP. Now totally cleared and she's been free of it for about 6 years. Then 2 years ago my other sister got just VLP. Her GP gave her steriod cream and it only lasted a few weeks before clearing up. It makes me wonder....as all 3 of us has had LP, if there must be a genetic susceptibility. Hoping, when I can finally get some treatment, that I will follow their example.

    Anne

  • julia52834
    julia52834 anne13482

    Posted

    Hi Anne, I used steroids for olp for a while did not help much and always returned. I am not willing to use these drugs continously. There is a root cause which may be different for each person my goal is to figure this out. I follow alot of functional medicine doctors, naturopaths, & holistic docs. I believe they are getting close to the root cause for autoimmune diseases. Good luck on your quest! Please share findings!

  • patty15138
    patty15138 anne13482

    Posted

    Hello Anne, Since I read your message it is a little worrying to me. First of all are you healing well? And how are you coping with the oesphagus diagnosis? Are the steroids working? I have basically the same thing, but I been treating it as Thrush. I also have Lichen Of Vulva which is acting up just recently. The reason for the Thrush diagnosis is because my tongue has a whit covering on it. I wish you the best!!

  • sandy58862
    sandy58862 anne13482

    Posted

    Had the white lacy cheek patches for 2 years prior to full scale lesions, sores etc. Dentist treated w chloratrimazole for 2 months then treated w nystantin for 6 months. Not until I had a big lesion and got it biopsied immediately was treatment available to me.

    Dexamethazone swish (steroid)

    Nystatin swish (antifungal/yeast)

    Plaquenil (immunosupresant)

    Controlled for 6 months now by a dermatologist plus the vaginal area.

    My primary at UCLA recommended an oral surgeon should follow this plus obgyn.

    Find the right dermatologist & or ent for this medical condition. Let the oral surgeon know you want a biopsy & the pathology report only.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.