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Wanted to share my experience to see if anyone else has had something similar and hopefully if I document my horrible ordeal this might help someone else.
I'm 51 year old female, no health issues or stressful events recently:
-Day 1: Started with 2-3 days of tingling burning sensation in my mouth, metallic taste, I thought I burned my mouth or tongue was irritated by toothpaste or something else.
-Day 3: Developed painful sores on one side of tongue and left side of tonsil and back of throat
-Day 4: Extremely painful to swallow, not able to eat or drink, went to Urgent Care. Tested negative for Strep; they mis-diagnosed me with a viral sore throat, gave me steroid pack and said I would be feeling better in 48 hours.
-Day 6: Still could not eat or drink. Shooting pain in left ear, and from left jaw up side of face to scalp. New blisters on center/left of roof of mouth. Went to primary care. Asked about shingles since everything occured on left side. They said, no, you cant get shingles in your throat. Diagnosed me with viral infection and canker sores, possible caused by Coxsackie virus. I asked for anti-virals, and they said they didn't work for what I had. They said the shooting pain was due to swollen glands pressing on the nerve and that this was common. I asked for pain medication and they prescribed me Lidocaine to numb the pain so I could eat, and said I could take 800mg of Motrin. This does NOT work!
-Week 2: Suffered horribly and just waited for the 10 days-2 weeks to be over thinking that is how long the viral infection should last. Lost 8 lbs, became very weak, pain bad at night, trouble sleeping.
-Day 12: Blisters started to go away, was coughing up yellow stuff, thought I was getting better, but very weak and still had shooting pain in ear, face and head. Could not taste food, or tolerate anything but liquids or soft bland food.
-Day 16: Became nauseas and developed hiccups that would last for hours for three days. Could not eat without gagging and throwing up. Developed airway coughing fits after trying to eat or drink.
-Day 18: Back at Urgent Care: Had lost 10+ pounds, very weak and dehydrated, was given IV fluids, and they took bloodwork to see if there was underlying cause. Bloodwork came back "normal". Extreme pain in throat and ear, conjunctivitis in left eye, thrush on tongue, shooting pain in head, extreme fatigue. Still diagnosed with a viral throat infection.
-Day 20: Went to ENT. They did a Laryngoscopy. Ear and throat looked "normal". Based on all of my symptoms and continued pain, was finally diagnosed with shingles. Put on anti-virals even though it was probably way too late for them to be effective.
-Day 28: Went back to primary care to get nerve block Gabapentin.
-Now (Day 32): Developed balance issues--walk, lean and even drive to the left. Earache. A lot of throat pain each evening and nighttime. Can eat better, but sometimes develop searing pain on tongue or in throat on left side after eating. Nagging throat cough. Extremely fatigued. Finally went back to work, but not myself yet.
-No way of telling how much longer this will last....
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