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I was diagnosed with UC in September 2016 after having a colonoscopy. I was given IV steroids in hospital for 5 days and then went onto oral steroids (prednisolone). I was meant to taper down every week from 40mg but it wasn't working so I had to taper down every two weeks.
About a month ago, I started feeling more urgency to go to the toilet and diarrhoea symptoms so called my GI nurse who said it sounded like a flare and told me to take 40mg pred and reduce weekly. I also done a blood test and stool sample. A week later, I had my regular outpatients appt and I told the doctor I wasn't feeling much better and had to call in sick to work some days. He advised me to stay on 40mg for another week. My blood tests came back normal and so did my stool. A week later I phoned the GI nurse as I was feeling worse and he mentioned going in for a sigmoidoscopy to see what's really happening.
My worry is that I am just flaring and it will just take a while for the prednisolone to kick in. Although I've been on 40mg almost every day for 3 weeks now. I don't really want to be an inconvenience to the doctors. Most part of the day I feel ok but recently I've been passing bloody brown/yellow mucus. I'm having mostly formed stools though as well, like thin long stool but sometimes it's mushy stools with ragged edges (sorry for TMI - we're all used to it 😂. I've got a bit of tenesmus too, and generally feel worse than I did 3 weeks ago. My doctor said I might have to go into hospital for IV steroids to kick it off, but I don't feel like I'm unwell enough to be admitted.
Do you think I should wait it out or just go in for a sigmoidoscopy and know for sure? Has anyone had experiences with oral steroids where you've still had bad symptoms after a while?
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