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Orencia as an alternative to TNF blockers

Posted , 6 users are following.

LeanaBeana77
LeanaBeana77

I had liver complications from both Humira and Enbrel (more severe with Enbrel) so my doc is considering Orencia. She wants to wait until after I see the liver specialist which isn't until February. 

For those on Orencia, how do you like it? Any liver issues? 

0 likes, 5 replies

5 Replies

  • amkoffee
    amkoffee LeanaBeana77

    Posted

    I'm interested to see how others response to your post. My rheumatologist started me on methotrexate and my liver enzymes went up so I had to stop the methotrexate as well as other medication I was on that can hurt the liver. My liver enzymes went back to normal but it was just tested last week and it's elevated again. Have you had damage done to your liver?

    • LeanaBeana77
      LeanaBeana77 amkoffee

      Posted

      Yes, my liver enzymes went up. My AST was 98 and ALT was 135. Not critical, but not good. 
    • Nichtsowichtig1
      Nichtsowichtig1 amkoffee

      Posted

      Hi. Habe seit 2014 erhöhte Leberwerte. Nach neuen Erkenntnissen ist es ein Gendefekt der LRBA was mit Orencia behandelt wurde. Aus Angst vor den gravierenden Nebenwirkungen habe ich mich nun nach kurter Therapie-zeit dagegenentschieden. Weiß auch nicht ob es die richtige Entscheidung ist. Wir werden es dann sehen. Die Werte sind zwar gedanken, aber ob sie wieder anzeigen kann man nicht vorhersehen. Schmerzen sind teils vorhanden. Vielmehr aber ist aber die Erschöpfung und Antrieblosigkeit erschwerend um ein normale Leben zu führen. Bin zwar nur Teilzeit beschäftigt. Dazu habe ich ein Kleine Familie sie mich auch braucht. Entweder arbeit und danach platt oder Familie und die Arbeit muss leiden. Natürlich die Familie dann auch wegen des geringen Einkommens. Aussichtslos und depremierend. Was macht ihr in so einer Situation? Habt ihr tipps für mich, wenn ja dann freue ich mich bis dann und LG

  • jo66120
    jo66120 LeanaBeana77

    Posted

    I have been on Oriencia for a little over a year. I love this drug. Once it started to work all the pain went away.  I still do not have any pain.  Although I have developed a rash and no body seems to know what it is.  I had a biopsy done on one of the bumps and I am waiting to find out what it is.  No liver issues.  Good luck. Wish you the best

     

    • LeanaBeana77
      LeanaBeana77 jo66120

      Posted

      Thanks jo. I'm glad to hear you don't have any pain and I hope he biopsy results are ok.

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