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Oscillopsia

Posted , 5 users are following.

c83614
c83614

When I recently went to my ent consultant he thought I had oscillopsia. Does anyone know any thing about this condition treatment or diagnosis. Does anyone know if vng balance tests can confirm this diagnosis??

0 likes, 10 replies

10 Replies

  • jan1958
    jan1958 c83614

    Posted

    Hi I have this condition, it was diagnosed by my consultant who is a neuro-otologist. He diagnosed me with no hi tec equipment, just by moving my head quickly and watching my eye reaction, and also my description. ( like someone holding a very shaky vidio recorder )

    The treatment unfortunately is limited to eye gaze excersises, after over a year I cant say I feel that much different really. I have found its a matter of gaining confidence that makes the difference to daily life.

    Jan

    • c4013
      c4013 jan1958

      Posted

      Hi Jan. Are you able to work ? I have been off ill with this. How do you find it. I haven't driven. Are you able to drive perhaps when the medication starts to work? Thanks for your reply
    • c4013
      c4013

      Posted

      Mine is worse when I walk.
    • jan1958
      jan1958 c4013

      Posted

      Hi, Mine is when I walk or move my head. I find it very difficult in busy places with lots of people, especially children running around or in busy traffic .I have to plan any time out of the house very carefully, I dont drive, but dont think I would be able to even if I did. I was a nurse for many years, but have had to give up my job, there is no way I could work with this, it is very disabling. There is unfortunately no medication I can take for this. Sorry this is all doom and gloom. X

    • c4013
      c4013 jan1958

      Posted

      Thank you for your reply. I fine it difficult where it is busy and the is a lot to negotiate. I walk with a stick it doesn't stop the sensation at all it just is a small comfort that I might not fall over. Before I used the stick I was clinging on to people for reassurance. But I have found betahistine 32mg x3 a day and time has improved it. But I still have some very bad days. I am a secondary school teacher. Since this started I have not been to work. I'm worried about returning while I still feel like this as it us quite distressing and there are lots to negotiate lots of stresses lots off walking around etc and I find my memory very foggy when I'm struggling with everything not staying where it should and me feeling like I might fall over. I'm hoping to go back soon other wise maybe a change of career. I'm under quite a lot of pressure to return. But having these symtoms and feeling like this can make the prospect quite scary.
    • jan1958
      jan1958 c4013

      Posted

      It sounds exactly like me, I too used to cling onto people all the time untill I gained enough confidence to walk with a stick on my own. I have to cling on when its dark, I just cant manage at all. I have dropped like a stone before in the dark. I was off sick from work for one year, after that they called it mutual agreement of termination of employment, I now have a small pension, but cant draw state pension for some years. I wish you luck with this, it really is a dreadful thing to happen to anyone, it certainly has changed my life beyond recognition. I do hope your employers are supportive of you too X
    • c4013
      c4013 jan1958

      Posted

      Thank you, How long have you had this? I hope you have good days. Thank you for replying to me and I send you all my best wishes xxx
    • jan1958
      jan1958 c4013

      Posted

      It has been over 2 years now, I cant remember what its like to be "normal" to be honest. Thank you for your wishes, do keep in touch. xx
  • ClaireM.
    ClaireM. c83614

    Posted

    Do you have any other vestibular related symptoms and are there any triggers for your oscillopsia? I ask because it is a symptom of Superior Semi Circular Canal Dehisence Syndrome which I suffer from although not a specific symptom I have had.

    Other symptoms are dizziness in particular in relation to loud noises or to pressure changes (sneezing for example), "brain fog" and hearing internal noises such as eyes moving.

    It is a rare condition so probably unlikely but I mention it as the one common factor between all SCDS sufferers I have met is that it took a long time and sometimes several consultants to get a diagnosis.

  • paula59
    paula59 c83614

    Posted

    I have jumpy vision I thought it was called nystagmus.  Ive been diagnosed with MAV migraine associated vertigo.  Im dizzy most of the time and have other head symptoms with the occasional traditional migraine from time to time. 
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