Osteitis pubis and hip replacement.
Posted , 5 users are following.
Hello everyone, I am due a thr next week, but I have some concearns.
I have suffered with osteitis pubis for almost 15 years ( only diagnosed in the last two, even then was never told how to deal with it or make it better. Good job nhs) this ongoing condition has caused pelvic imbalance, muscle degeneration and now my left hip has worn down to the point of no return.
My worry is that my recovery from the thr will be a lot more complicated and tougher than other patients due to this condition. Does anyone else suffer from this condition and have any advice or pearls of wisdom they could offer?
0 likes, 9 replies
sarah1996 mishelle46654
Posted
Its not an easy recovery, i can only walk very short distances on crutches, im no weoghtbaring for 8 weeks and find it difficult to lie in bed but i believe this surgery will be worth it in the end.
Best of luck to you hun
mishelle46654 sarah1996
Posted
Just to ask, do you feel the thr will help your pelvis issues? Of course its early days for you and I wish you all the best. Would be nice to stay updated with your recovery and compare notes once im under the knife, sounds like we have similar underlying issues. I have been feeling very lonely thinking im the only hippie with extra problems
sarah1996 mishelle46654
Posted
sue1957Geo mishelle46654
Posted
i had had my right hip done in November, my hip had diffused and pushed my pelvis up so my leg was about 2" shorter, didn't want it absolutely no way, then spoke to this wonderful family and said yes. The pain leading up to the operation was really bad, then afterwards wow the difference when I woke up was amazing, and now nearly 6 months gone with physio and excersises I am walking slightest limp. All I can say is it's a journey, has ups and downs but if you do as you're surgeon, physio and nurses tell you you can do this, ask here any time and good luck xx
sue
mishelle46654 sue1957Geo
Posted
AnnieK mishelle46654
Posted
There is a good article on OP in wikipedia, and if you haven't seen it, you might want to check it out. It says there hasn't been much for treatment for it until recently, and lists some that are available now. It also says that "it remains a well-known complication of invasive procedures about the pelvis", and pregnancy and certain kinds of athletics. I assume that would include having bone-on-bone osteoarthritis or other conditions that would necessitate total hip replacement, as we often have bad pain and limping and debilitation before THR.
It is possible that THR recovery will be harder for you. Are you currently using walking aids and/or pain meds due to the OP? How well do you get around now? You may have difficulty walking afterwards, even with aids, even if you are allowed to bear weight on your surgical leg. So you need to prepare as best as you can to make things as easy as possible for yourself during THA recovery.
I am having hip surgery soon on gluteal tendons that will mean I have to be either totally non-weight bearing on the surgical leg or toe touch only for 6 weeks or more. I am going to a transitional rehabilitation center after my surgery until I am comfortable ambulating without using that leg. My arms are weak and sore from OA in the shoulders, and my "good" leg is also weak and painful from OA and other problems, so that will make using crutches to bear my full body weight difficult. When I do get home, my sister will help me during the day, and my husband will help me at night and on weekends. I have a fold-up wheelchair that we can use if needed, but I hope we won't need it.
I am sorry the NHS hasn't helped you with this. May the future be better for you!
mishelle46654 AnnieK
Posted
Unfortunately I am one of the unlucky ones who have so far had a miserable experience with the nhs. My main fear is that my OP will be even worse than before my thr. I had a fall and fractured my pelvis a year ago and have been on crutches constantly for the past 6 months. This may sound crazy but my hip doesnt hurt that much, I have lost all range in my left hip, cant reach my left foot and cant move it more than 20° in any direction, but any discomfort has always been overshadowed by the OP. I was shocked that my surgeon had decided on a thr, but asking for a second opinion seems out of the question.
I am considering biting the bullet, selling some things around the house to pay for private physio to help me with my recovery, because I have a feeling that with the OP, if the physiotherapists I have seen in the past have anything to go by, I may end up with more muscle damage and a much longer recovery period, which I dont think I will be able to handle.
AnnieK mishelle46654
Posted
Perhaps it IS possible to get a second opinion from the NHS. You do have a very special circumstance with your longstanding OP, and now the fractured pelvis. I think you DESERVE a second opinion!
mishelle46654 AnnieK
Posted
I have spent a lot of time trying to understand this condition by doing a ton of research, but strangely enough theres not a lot of info on the link between OP and hip replacement and recovery complications. I suppose ill find out once I get the surgery :s