Osteoclastoma aka giant cell tumour

Posted , 3 users are following.

My 20 year old daughter has just been diagnosed with osteoclastoma also known as giant cell tumour.

She is booked in to have a biopsy on the 24th August I'm worried sick anyone know sntgumg about this

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6 Replies

  • Posted

    Hi ya Michelle,

    I'm so sorry to hear your news. I don't know anything about osteoclastoma.. where abouts in the world are you?.

    I am in the UK London. I am under stanmore the royal national orthopedic hospital , my surgeon who done my knee replacement is a specialist in that particular bone cancer... he told me he has done 1000's of surgery for it, and the success rate was fantastic. His name is Dr Rob Pollock. I am only 41 with osteogenesis imperfecta (brittle bones disease) which is why I needed a specialist orthopadic to do my surgery. And I can not rate him highly enough. Ask to be referred to the royal stanmore orthopaedic hospital if you are in England. It is the best hospital for bone cancer treatment. Wish you and your daughter all the best of luck.. keep us all updated with her recovery. Best wishes to you both.

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    • Posted

      Hii

      We from London too and she has been referred to stanmore bone tumour clinic.

      I've had a couple of replies 1 whuch has made me feel alot mire at ease ??

      Hopefilly we might be under your doc fingers crossed x thanks fir your reply

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    • Posted

      Hi Michelle,

      Wow.. That's fantastic news. He really is a fantastic orthopedic surgeon.

      He has worked wonders on my knee.

      Also child and teenage bone tumor patient's take priority over standard waiting lists.

      Your daughter will be seen and be on the mend in no time. I have total faith in Dr Pollock.

      No other surgeon would help me with my knee due to my brittle bones, he didn't think twice, and 14 weeks after total knee replacement I feel great.

      Stay strong and positive. Your daughter is in the best of hands.

      Keep us updated after the 24th.

      Good luck

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  • Posted

    Hi Michelle

    Don't panic clastomas are benign tumours of the bone it is sarcomas that are the ones to worry about. Treatment is usually very successful on these types of tumours. Stay positive I am sure your daughter is stronger than you think.

    I am sure all will all work out well for you both.

    X X X X

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    • Posted

      Hi jackie

      I feel so sick with worry this was such a lovely reply to have reaf ??

      We have been waiting for her appointment for over a month and o had booked a holiday with my partner I been calling an falling the hospital to try get this appt b4 I went but oh no.

      So I'm not at home and gt the call today it's ruined my day and probably will ruin yhe rest of my holiday..

      But your reply has made me feel alot better thanks soooooo much x

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