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Osteoporosis Advise

Posted , 15 users are following.

paul12125
paul12125

Hello, I am a 44 yr old male and was diagnosed with osteoporosis in 2014 on a severe level, my T score for the lumbar was -4.0 Femoral neck was -2.9 and my hip was -2.7, I was taking alendronate sodium for 2 years with very little results and I was recently diagnosed with Barrets Esophagus so I cant take Alendronate no more, they switched me to injectable forteo which Im waiting for insurance to approve because the cost is outrageous.. I have had a total of 4 compression fractures in 2 yrs the T9, T4, T3 and T5, I feel so miserable and depressed its unbelievablt to have these problems at my age, I am working but I am in pain everyday and I worry about my family and their stress, sometimes I feel as though it would be easier to end myself and my family would have the survival benefits to manage better, I feel as though my issues are a hindrance, can anyone please give me any insight on any causes that could give this to me, my Endroconologist is testing now for multiple myeloma and it really scares me.

1 like, 25 replies

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  • paul12125
    paul12125

    Posted

    Well it turns out that my Endroconologist contacted me this morning to advise me that I have very high prolactin levels which is produced by the pituitary gland, it also causes low testosterone, this may be the culprit for osteoporosis, she is leaning towards a tumor on the pituitary gland causing the high levels of prolactin so she is sending me for a brain MRI, I really want to thank those for their words of encouragement and support during these stressful times.
    • allison72169
      allison72169 paul12125

      Posted

      That's great news, Paul, because I believe that pituitary problems are usually treatable. That diagnosis had crossed my mind earlier, but I assumed your endo dr. would have ruled it out before posing the possibility of multiple myeloma. (Sounds as though he failed to do so.)
  • faith87650
    faith87650 paul12125

    Posted

    See, there is hope. You are very young for osteoporosis so an alternative cause is quite feasible. Hang on in there. I have been on all the drugs for it and sometimes feel too much is made of it all. Some worked well, some upset me but I am here, have fab children and a wonderful grandchild (plus hubbie of course), so have to be grateful. It will be alright, you will see, be positive. Let us know how you get on.
  • jill0890
    jill0890 paul12125

    Posted

    Paul,

    That is such wonderful news!!!!!!!!! For me, they never found a cause.... Except that maybe my bones just never peaked. I'm thrilled that maybe they are already on a path of solution for you!!!!

  • Paul529
    Paul529 paul12125

    Posted

    Hi Paul, I can completely relate to you're post, as a 37 year old male also with severe OP diagnosed recently enduring test after test which is although gruelling a positive step.

    I too have had a hard time with stress and anxiety which was bottled up but you need to talk, us males go into our cave and silently worry.......please don't worry, seek out every ounce of support you can and turn the confusion into fighting spirit, be determined to conquer this terrible time, it's a lonely condition as not many our age face this but we can all help and face together

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