Osteoporosis Medication, Improvements in bone, side-effects?

https://patient.info/forums/discuss/browse/osteoporosis-1650

Sorry - should have thought a bit quicker! Just in case yo find navigating this site a pain - not suggesting you couldn't manage it at all.

Jeepers, what was I thinking?  Thanks.  J

Pred brain? 

Yes, that and 'senior moments'. I'm lucky enough to have the two conditions -  PMR and OP. Great fun.  J

Don't think this is pred brain, my epilepsy I think is under control but they think the 4 weeks on alendronic acid has now resulted in Osteonecrosis in my jaw. Waiting to hear about an operation to replace dead jaw bone. Sorry to bother you but It seems to be one thing after another. Thank you for your reply

I'm sorry - I'm confused, I haven't replied to you, just to Juno.

I'm sorry to hear that - and so quickly after starting to take AA. That might be an indication that it was due to something else though. It is possibly a very rare side effect of pred or another medication. And it can happen anyway. 

I do hope the operation is successful.

Angela, this sounds really scary, that after only 4 weeks of AA intake you you started to have jaw problems.  Did you take the ONE a week or daily tablet? 

 

It is a rare side effect and the four tablets I took were 8 months ago but my Dental Consultant said it is what they think has caused this part jaw death. I'm not telling anyone they shouldn't take it but just that they should make an informed choice x

Exactly - it is the informed choice that is important and both sides are presented here. There is plenty of the pro-advice from the doctors who have swallowed the marketing info without chewing it. They rarely offer the other side.

But what I am saying is that while this is claimed to be a rare side effect I do not believe that it is as rare as it is said to be. And if you add together the "rare" side effect of AVN to the "rare" side effect of atypical femoral fractures and the development of shin splints in patients taking AA and the gastric complications - the side effects due to AA suddenly become a notable group.

Since GPs also hand it out apparently without looking at their patient's history and the data sheet with contraindications which is likely to add to those numbers - a lot more informing is required.

Stank you Eileen, joining this group has made me feel that we are all going through the same things and feelings. My only concern now is that I have read up on the blood tests my consultant has advised all leads to Myeloma (I now I shouldn't have) what do you think? Regards

Dear Angela

Hopefully it won't be Myeloma but if you need support in any way I have 2 sisters diagnosed with Myeloma and am certainly willing to be there for you as I know only too well about the Myeloma. Just ask any questions. You can private message if you like. You will need further tests for the Docs to make a definite diagnosis.

One day at a time. When do you see the Docs to get the results officially?

hugs and Kisses to you

Kathy

 

Myeloma is one of the things that should be ruled out before a diagnosis of PMR is made. PMR is the name given to a set of signs and symptoms - it isn't the disease itself, it is always due to some underlying disorder. Once the nastier things have been ruled out, and other common causes of the pain and stiffness are felt to be unlikely (other forms of arthritis), then you can feel it is possible that this is the PMR we discuss here in this forum. And if it IS myeloma, then it is better to know that and be treated properly than to be treated for something else that it isn't.

Sorry, that was thank you x

Thank you very much for the reply. I will certainly take on board what you have said but sure I will be ok. Take care xx

Thank you Eileen. I am not trying not to be depressive but like you have said I wanted to be prepared. I'm sure I am ok. Once again thank u xx