Ostioarthritis-shoulders , hips , back and hands

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Has anyone waited long time for surgery for arthritis? I had hip replacements done in 1998 and 2003. Now need 2 shoulder replacements .Been waiting 3 yrs, now find out could be another 1-2 yrs. Also need 1 hip redone as it has worn out. Any advice.

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  • Posted

    Hi I’m the same except for needing shoulder implants . I’m sitting here in pain . The docs are changeing my meds . They are giving me gabapentin instead of paracetamol and dihydracodeine . I really don’t know  what’s goin on I only know I’m in agony 😢

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  • Posted

    Dear Ethel,

    we so have a lot in common..... my heart aches for you..... I have "doctors" in my family........ Their opinion of shoulder replacements is that they have a LONG way to go..... I need both my shoulders done too !  had my right hip done..... total hip and it is broken and worn out........ I need my other hip done....my knees and elbows.... knees the family says are NOT good enough yet..... and when they saw my latest hip X-rays they freaked and said s**t hips are not yet good enough either!  I had to have surgery on my back...... domino theory now in play....... my entire back is shot..... NO doctor can help me..... per my Hip specialist who said and I quote..... "I think I have a GOD complex at some times but I know that your case is way beyond my skill set..." He advised me to get on a better pain management program and to take the pain pills I hate....... I told him that I wanted "assisted suicide" that I am tired..... living day to day in agony is getting old..... not have any quality in my life sucks...... being a schlep and burden on my husband, family, and friends is beyond the pain I endure...... But I promised my hubby that I would go to the pain clinic and see what they can do..... 

    I use to find the most relief in a pool.  I think I still would but I cannot get in and out of the pool..... I cannot go up stairs.... or use my shoulders to pull me up...... how I wish I could get back in the water......but that is the best advise I can give you...... get to a hot pool..... walk and swim if you can......I wish I could just live in a pool but that is not possible as..... we all that bathroom calls....... getting out and to a toilet in time is not possible for me....... 

    Do you live in the San Francisco Bay Area????  Mills Peninsula Hospital has an indoor heated pool with hoists and walk in paths........I use to crawl there daily! lol.....2 years ago we moved to Modesto...... they don't have a facility like MPH.......bummed and trying to save money to put a one lane pool in our yard that has a walk up path and or a hoist....... the cost is outrageous....... 

    I hope getting in warm water helps you......and you have a facility near by that can accommodate you.......write back if you want someone to vent too!

    take care......always....Erela

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  • Posted

    So sorry for your pain. I am now on cannabis. Now in my neck also. Will be going to pain management. I live in Surrey , BC. They feel that hips and knees comes before shoulders. What a crock.Sent letters to all the higher ups. Don't know if it will do any good but they know how i feel. Can;t take morphine or codeine. Yesterday took 6000 ml Tylenol rapid release  . Don't like being drugged. Pain was so bad I felt sick .I also found out its been 4 not 3 yrs that its been bone on bone .

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    • Posted

      Dear Ethel.....

      I am sorry for your pain too........ I use God's Medicine as well.... I make teas, and other edible foods like cookies, applesauce ..... all kinds of food you can put cannibis in and it works amazingly on my bone pain...... not enough though to stop taking 1 pain med daily..... so wish it did.......  I too do not like being drugged and stupid.......the orthopedist hates that...... he wants me to take a fist full of pain meds daily!!!!  not gonna happen...... I may have outrageous pain and bad joints everywhere and I am not going to let me mind be fogged to where I cannot tell anyone about the pain......  and that is what the doctors don't get...... Pain pills fog the brain!!!  they do not get rid of pain....... can you take Motrin????  I was on Motrin 800mg 4 times a day from the time I was 9 until my stomach crashed when I was 45, when a sports doctor said..... oh my God.... you can't take all this Motrin and changed me to Celebrex..... I was in the hospital with in 48 hours with a bleeding stomach...... then he said Viox..... oh I only made 24 hours before I was admitted to the hospital again...... now I cannot take anti inflammatories at all.......and I am angry as that they worked the best on my bone pain and let me live a regular life!!! You can get 200 mg Motrin over the counter at the drug store....... if 200 mg helps you should talk to your GP about the prescription strengths.... 400,600,800.  I wonder if my stomach would have crashed if that doctor had not taken me off the regime another orthopedist had me on since childhood....... will never know now and I long for those Motrin days.... lol......

      Bone on Bone hurts like hell....... I am bone on bone in most of my joints..... do you click yet????......... I hope not and will pray you never do......

      Write me if you wish...... I will be happy to let you vent anytime you need to! .....

      Praying for you..... May God Bless you..... Always....Erela

      ps.... laughter helps...... I watch a lot of comedies.....meditate or relax to music.... soak in a hot tub... if you can get in and out that is...... HUGS

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  • Posted

    Oh Ya, I click ,crunch. A friend gave me a hug the other day, jumped back and OMG, what was that. I said just my shoulders. She was shocked.Tylenol is the only over the counter I can take. had an ulcer years ago, now I have to be real careful or I'm doubled over in pain. Allergic to morphine so no opoids, celebrex didn't work and too many side effects with demerol. My Dr. suggested cannabis. Just applied yesterday so hope it works. It will be a pill I put under my tongue. I'll let you know if it helps.

     I wrote letters to Fraser health complaining about the wait. I was shocked when I heard back from them. A lady is assigned to me. Just waiting for her to call, I have a copy of C T SCAN, they can see how bad its gotten. Your right, laughter is good but sometimes very hard to laugh, most days I'm just short of tears.When I complain about the pain ,my husband knows its bad, I usually stay quite. people get tired of hearing complaining constantly. Its nice talking to someone who knows what I'm going through. Thanks for listening.biggrin

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  • Posted

    oh my ....you poor baby...... I am pretty close to tears or crying most days...... I figure I am helping the water shortage......  Shoulders are still a scary subject which sucks for you and me for sure...... If you are able to get the hip redone I would do it ASAP..... my total hip that is broken and worn out and makes me cry out all the time, which to me is very embarrassing, cannot be replaced...... so if yours can..... make them do it!!!

    I will be praying for you...... send me a message if you wish..... I will answer I promise!

     

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  • Posted

    I've read where the hip as been redone 2-3 times, why can't they redo yours. Must be extremely painful. I wish they can give you some relief. 

     I want to tell you a little about myself. I'm 68 ,3 kids ,1 girl and 2 boys , 8 grandkids and 3 great grandkids.  I used to enjoy swimming , fishing and darts but can't do them anymore. I also enjoy reading, good thing as its the only thing I can do comfortably. 

    Had my x-ray done , now wait for results. Take carewink

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    • Posted

      Dear Ethyl

      wow our life story of what we liked to do is identical !!!  I so miss fishing and camping......walking...bowling and darts......softball...... I was very active....and I was a very bad girl as I was told at 28 that while they did not know exactly what was wrong with my bones something was very wrong and I should not jog, or play softball..... so I obeyed...... they should have told me that I needed to become more sedentary...... oh well...... lol..... I cannot have my hip replaced because my bones are so sick they will not take or bond with a hip..... so let us see how long it takes til it rips apart.....the hips are on the verge of dislocation..... hopefully when this happens they will finally take me to a VET so I can be "put down"...... I would never let my pet suffer the way I do......

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  • Posted

    I hope you are having a comfortable day as possible!

    sending you Hugs........Erela

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    • Posted

      Hi Erela, wanted to up-date you. Remember I was so upset that I wrote to everyone I could think of and complained. We I just got a letter from the review board and also my Dr with pre-op papers. They are going to do the operation. It will probably be a few weeks away but better than 1-2 years. I was so happy I cried. Been a long wait. 

      How are you feeling?  I wish someone could help you also. Nobody really knows what the pain is like, how much it hurts unless they have arthritis.Take it easy. Hugs  

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