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other possible HS triggers

Posted , 6 users are following.

tom85153
tom85153

i have cut out all nightshades, gluten, dairy, alcohol, caffine, sugar, red meats, pork, chocolate, any drugs. i drink lemon water daily, and exercise every day. Im not overweight at all, or dirty in any way. literally no idea what could be causing my HS symptoms; i get a new spot every day pretty much and always in/on my groin or chest. ive done this diet with NO exceptions for at least 3/4 weeks and still very little improvement. tumeric doesnt help (think it actually may make it worse). I have tryed every remedy that is commonly suggested on the internet and from GPs. thsi is a very long shot, but could anyone even suggest another possible explanation. btw its definitely not an std or mrsa. pretty sure its an autoimmune reaction.

0 likes, 10 replies

10 Replies

  • ruth93162
    ruth93162 tom85153

    Posted

    Hi Tom, wow, what are you living on, you must be totally fed up!!! and cutting out all of those foods etc, thats quite amasing, maybe a bit too much too soon??.  

    I have given up smoking, take canibis oil and silver water.  Im not cured and i have just recently had yet another surgery to drain a bad one on my groin.  They seem to flare up when its time of the month, when im stressed or exhausted.  I dont trust doctors anymore as they just throw anti biotics at me and they do nothing for it, apart from make me even more weak.  I think you maybe on the right track regarding auto immune and maybe the holistic way, natural remedies, homeopathy, honey, coconut oils etc may help you?  

  • teresa14337
    teresa14337 tom85153

    Posted

    I agree with Ruth,Wow...I think the only thing left is the alcat test...and maybe then you can figure out what triggers them. If I ever win the lottery I am so donating to help find a cure for this awful HS..good luck...smile
  • Scott1986
    Scott1986 tom85153

    Posted

    Hi Tom. I feel that although lots of people are talking of nightshade and diet and turmeric etc. This hasn't got anything to do with HS. Yes people are going to jump down my throat and say I'm wrong blah blah blah, maybe all these diets have certainly worked for some people (I'm not denying that) but won't work for another cos everyone is different and maybe these people are actually sensitive to foods/allergens etc. HS is an autoimmune inflammatory disease (it is the hair follicle that is not working properly and gets plugged, then infects your sweat glands.. Hence the inflammation that comes after)... I understand that foods and home remedies have antinflammatory properties which may or may not slightly work but it needs proper management from a dermatologist so it doesn't progress through more stages cos there is no going back when it gets to stage 3. Stage 2 can go back to stage 1 and stage 1 can stay at 1. Can I ask what country you are in and area within country? I lost all hope with all the different antibiotics I was on and them not agreeing with me and having no effect at all on my HS. It's trial and error and the right treatment is out there to help reduce (not cure sadly) your HS symptoms and frequency. A GP is not the answer and can't do much.. It needs to be specialist treatment from a dermatologist. Thanks for you post and I will be happy to give you more advice on your reply.
    • crystal_08850
      crystal_08850 Scott1986

      Posted

      You're post is very confusing and I hope it doesn't lead some sufferers astray from their goal. You are contradicting yourself by saying food sensitivities have "nothing to do with HS" and then you say "these diets have certainly worked for some people (I'm not denying that)". Total contradiction.

      I am living proof after being treated by a dermatologist for 10 years and trying everything else that nightshades and peanuts trigger my HS. Period. I stay in remission by staying away from those foods - totally. Also, autoimmune conditions do have triggers.

      Please be more supportive towards people searching for their remission. I'm sorry you haven't found your trigger but you shouldn't discourage others from trying to find theirs.

    • tom85153
      tom85153 Scott1986

      Posted

      cheers, I appreciate the advice. i live in england and have been treated by dermatologists. I agree that this disease varies in causes and symptoms between suffers and accept that much of what will work for one person may not for another. Its just frustrating that little scientific research is being conducted and the medical industry doesn't appreciate other treatments such as diet change. Im sure ill find something that works, its only a matter of time. thanks
    • Scott1986
      Scott1986 tom85153

      Posted

      Thanks for your reply Tom. What region are you in in England? What sort of treatment and names of different antibiotics have you tried so far under your dermatologist? I'm intrigued as different dermatologist seem to have different treatment methods. Also less experienced dermatologist may not have the experience which is luck of the draw. I have had the exact same thoughts as to the lack of scientific research and the feeling of hopelessness with the medical industry. There really should be more... But who are we? (apart from suffering all our lives) Ha. It boils down to money at the end of the day with the NHS. They obviously have more important things to fund research such as cancer etc etc. It is not fair really and all HS sufferers will feel the same cos it is a debilitating disease. On the life quality index it is one of the highest scoring of all skin diseases such as psoriasis and eczema etc. Which should make it a priority in my eyes but sadly it is not. Thanks for your reply.
  • tom85153
    tom85153

    Posted

    ok so ive found out it was sweet potatoes that was triggering my outbreaks! definitely did not think that would be the problem but it 100% was. i am now in remission for the first time in 5 years! Hope everyone is doing well 
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