Ouch ! Nerves - joints - muscles hurt

i was tested fir lymes at my request and came bavk neg

unless it can be wrong ?

iv just looked up cirs and on the full symptom list i have about 40 of them over the last year

perhaps iv got that -----

If you have that many of the CIRS symptoms I would definitely look into it. If you can find a Shoemaker certified doctor they will do bloodwork , a visual contrast test. There is an online test on survivingmold. Under mold symptoms. I took this and it was very accurate. I failed it and have CIRS. Could be helpful.

i already took test this morning and failed also

i cant be sure but its looking very likley i have this

so are you cured ? is it curable . how ?

hi k

im not sure how much you know about cris abd if your in uk or not

or if you still have it and if there is a cure as such

my gp has not heard of cirs and doubts i have mould poisining as it would have been over a year ago when i was sanding old wood that pribably contained mmould

its the most likley time

that said i became ill just after i finished this sanding episode

my local private hospital can only offer some of thr blood tests you mentioned bit not all

do you think its still worth getting some done ?

This is the trouble with CIRS, many doctors are still not familiar with it. So if they havent heard of it then they dont believe it exists. They also confuse CIRS with a mold allergy. What happens with CIRS is if you are part of the 25% of the population without the gene, is you can be fine until you have an event that triggers it. Like pfisteria, certain bacteria, water damaged buildings etc. If you have CIRS your body is unable to remove the toxins and they just circulate and you continue to get sick. I would listen to what the doc has to say, BUT we know our own bodies and when a diagnosis fits or doesnt. I was sick for 1 1/2 years before finding a doctor that could figure out what was wrong. I was told I had Lupus (even though the symptoms did not quite match, eczema, etc. If you feel this is what you may have as well I would look online for a VCS test, that is the second thing they check after the symptom list. The treatment after that is typically binders to remove the toxins. Cholystyramine or Welchol are typically used. Then after a month or so they start a nasal spray, then once everything is cleared a VIP spray. I do have CIRS, I am currently on the nasal spray and have not reached the VIP stage yet. If you have them do some of the bloodwork I would do TGF-Beta, C4a C3a and cortisol. But be careful if your cortisol is off, doctors who are unfamiliar with this will want to give you cortisol which is not the right thing to do for CIRS. Also many times with CIRS you will find steroids like Prednisone do not help and will make things typically worse. There is a Facebook group for Lyme, Toxic mold. It is very helpful and helps to show how many people are dealing with this illness. I would highly recommend taking a look. Best of Luck!

youv been so helpfull

so the blood tests are to look for the missing gene rather than infection ?

aside from continuimg with dictirs i think il start on ir saunas and charcole binder

it cant hurt !

iv been following the facebook groups but find its on the edge of being ridiculous

there are people posting pictures of a bit of mould on an outsude chair and blaming their entire ilness on it

also everyone that is convinced they have it is in america and yet doctors in uk dont know anything about missing genes or cirs

moulds been around forever but apparently this one doctor shoemaker found a cure

what then of the rest of the world that doesnt seem to have it ?

its not making sense at all

I'm not sure of the question you are asking here but Ill try to answer what I think you are asking. Yes there will always be people in groups who are ridiculous, but once people have gone through all the treatment they don't want to be re-exposed and feel bad again. So that might be why some panic when seeing even a small amount of mold. A small amount will not cause the illness though. It is repeated exposure over a longer period of time, then a triggering event (an accident, trauma, giving birth, high stress event etc. Yes, most of the doctors treating this illness are in America, however even here it is difficult to find a knowledgeable doctor. There are some in Europe, however they usually go at it from a treating Biofilms, which surround MARCONS in the nasal cavity. approach. Which isn't wrong either. As far as Shoemaker discovering this illness, someone has to be the first. Cancer, asthma, allergies I'm sure were around long before someone understood them. He more stumbled across the illness as he was treating a patient with symptoms of CIRS and ran out of ideas on how to help his patient. He gave her Cholystyremine (a cholesterol med) to help with her diarrhea. As it is a side effect of this med. He was just trying to relieve the symptom. She came back and was talking about how he med helped with not only that but her headaches, and other problems. This med does not add anything to your body, it only takes things out. Which is what started his discovery of the med removing toxins. Yes most people can be around mold and not have a problem at all, because their bodies are capable of removing the toxins. They have the gene to be able to remove them. Along with the blood tests I listed before, and the VCS contrast test, an MRI with neuroquant can be done as proof as well. They use the neuroquant portion to determine between mold, lyme, ptsd. I hope this helps with your questions.

*faecal cal protein, stupid auto correct