Our Curious Lifestyles

Hi all, hope you had a good Christmas!

Most of us on this website/forum have to rely on our wife’s, husbands, partners and some even rely on sons or daughters. Now, when I mention the word “rely” I am referring to a person or persons that look after you, on a daily basis. We all depend on someone to either listen to us, or guide us in some way or another, or help us physically. 

I know without my wife, daughter and son I would be stuck regarding my mobility. I am unable to use a manual wheelchair and an electric scooter – my right arm has a tendency to pull in via a spasm. I did try once but scratched our brand new car by a foot long scratch which went through to the primer which looked bad because the car was black and the primer was white! So, if you want your car scratched then by all means visit me! Lol

Seriously, what do you find to do during the day apart from being on here, I just wondered. Mainly because I received an email today from this site saying this:

Hi disabled_les

Congratulations, you've been awarded the 50 day streak badge!

"Visited every day for 50 days"

That email could be looked at from various perspectives…

1.       I am addicted to patient.info forums

2.       I have nothing else better to do

3.       I like putting my health and what I’ve been through over many years and to help many people in the process. The subject matter does not really bother me and neither does the age, some people I have had chats with are in fact younger than my own children, or sometimes around the age of my youngest daughter. Either way you can communicate in private or public or and remain anonymous.

I see myself being in the third group, I help and make people feel better by communicating with them on their level, or calming them down by listening to their problems which I have overcome myself in the past. Or even the many medications I have been on during my life.

I know many of you know that I am severely disabled in many ways, hopefully there should be no mistakes in my spelling in this message, I used Word to type it up – so I cheated a bit. I do find it difficult to type such messages without spelling or grammar mistakes, only because I cannot sit around in one place for too long without being in pain. So, I use Office 365 paid by a monthly subscription, which is quite good because as I type up messages it sends an updated copy to the iCloud, once I change from the desktop PC to the iPad then I can run Word and recall the message, so it is pretty handy.

In my spare time (a lot of it spent in pain!), I try and do abstract art and put it on my Facebook account and Photobucket. I try and go to the cinema at least twice a month, it gets me out of the house and I can watch the latest movies.

I always try and book AB (Admission Boxes) in the cinema, they give you 2 normal seats and 1 disabled space for a chair, saves me having to move out of my wheelchair. Usually, I take the kids and my wife goes home and says she can relax for a few hours before picking us back up. I must admit she does a lot for me, and sorts out the finances, I used to do that but it got to a stage where even I used to get confused with what was going out and going in the bank.

So, you may ask what do I do in my spare time, well it’s simple – I try my hands at abstract design, some come out not too bad, others look a mess! But I and the mouse have to fight to get it in the right place of the screen. Now, all I need to do is find a way of holding the iPad steady to take photographs. The joys of spasms, what I life I lead, spasms, cramps or pains.

I look forward to reading what you do in your spare time. Oh, and by the way a Happy New Year (I thought I’d get that in early just in case, I’m doing something else – no I don’t drink alcohol, just too many medications to even think about that!).

Regards,

Les.

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