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Out with the old.

Posted , 7 users are following.

tony35673
tony35673

Saw the Rheumatologist today, out with the leflunomide and in with cosentyx.That's mtx, hydrochloroquine, sulfasalazine, actemra, cimzia and economize that have failed to provide any relief. The Rheumatologist told me today I am one of the most difficult cases he has ever encountered, the other is receiving chemo. Oh joy.

0 likes, 9 replies

9 Replies

  • mary76396
    mary76396 tony35673

    Posted

    That's terrible Tony, I hope the Costentyx works for you. Keeping my fingers crossed.

  • sukes
    sukes tony35673

    Posted

    I seem to be allergic to most meds as well Tony - great isn't it.

  • martin31040
    martin31040 tony35673

    Posted

    It seems that if your own immune system decides to attack you it's like a dog with a very juicy bone, it sure takes some mental strength when you have chronic health problems.

    • mary76396
      mary76396 martin31040

      Posted

      According to most of my friends I seem to whinge about nothing! One even said to me the other day that she had 'a bit of rheumatoid in her thumb'. I sometimes want to strangle them (I won't though).

      It's all in the name, no one says that they have a BIT of MS or lupus or Crohn's disease and yet the level of pain and exhaustion we with RA suffer is just as bad.

      good luck to you guys, hope you get some relief.

  • Gloria814
    Gloria814 tony35673

    Posted

    Sorry to hear that, Tony.  I was wondering how you were doing.   Hopefully cosentyx will be the magic you need.   Not sure if any of those medications you had were an infusion.  MTX is chemo drug but RA pts take a much smaller dose than those with ca.

     I hope this is THE answer for you!

  • carol303055
    carol303055 tony35673

    Posted

    Sometimes it's nice to just be 'like everyone else' for whom the treatment works! Fingers crossed for you x

  • tony35673
    tony35673

    Posted

    I've pretty much given up on finding anything that will help with the pain.   Yesterday I said pretty much the same to the Rheumatologist, I also said I think we should concentrate efforts on pain control with NSAIDS and what have you and perhaps finding something that will slow down it's progress because it is now spreading like wildfire.   The Doc wasn't keen on my use of the ocassional ibuprofen but sort of gave in when I said I can't even lift a coffee cup without some assistance from tranadol and ibuprofen.

    • carol303055
      carol303055 tony35673

      Posted

      Yep, been there. My husband has had to wedge a mug in my hands. It must be difficult to comprehend even for the professionals if you've never been there. Hope you get some relief soon.

    • joanne23chick
      joanne23chick tony35673

      Posted

      Hiya Tony, 

      i li agree with you there I have tried mtx tablets then subcutaneous injections as tabs made me so sick! Then apremalast,golibunab,leflunimide,embrel plus various pain meds like gabapentin,tramadol, zomorph, fentanly patches to no deal the tried cosentyx which completely cleRed skin but never touched pains in muscles,bones or nerves so my rheumatologist said don't know where we're going go now treatment wise!!!!!! I wish you the best of luck to you with your treatment Tony smile

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