ovarian cyst,adhesions and endometriosis

Posted , 4 users are following.

Hi,Im a 39 yr old mum of 3 and i have had terrible abdominal pain since 2004,all the different GP'S i have seen have said i had IBS.Any tablets they gave me were useless.Then in feb i went back once again but this time was offered swabs and a ultrasound.GP was very rude and did not

want to refer me as she was sure i was waisting time and money. My ultrasound showed a 10cm cyst on my right ovary,the radiographer insisted that i didn't go back to the same gp again.I then saw my gyno and she said that my symptoms were also signs of adhesions and ednomitriosis,that i'd have to have a endoscopy in 3wks to see whats going on.She doesn't seem keen on doing anything about the adhesions but if im in pain i think they should.

Can you give me any advice please.I also want my ovaries removed their all i have left after a hysterectomy in 2001. THANKS.

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  • Posted

    Did you enjoy your street party in Anglesey seen it on TV and thought of you and your family, he was awarded the title of Baron of Carrickfergus where i live in N Ireland hope he's not expecting to much as it's not much to look at or see very boring except for a boring old castle.
  • Posted

    we never had a street party here its quite a busy road but there where a few going on in town ,we know where they live and i hope they get left alone.I havent been on for a while ive been in a lot of pain with bowels and ive been going so much ive split my bum in 3 places so the docs been keeping a eye on me he wanted to send me in and they could operate but i had piles removed in 2004 and it was so painful but i said no way was i going in there just for that,hes given me ointments and wipes i have been sitting on cushions and having warm baths its helps until i go again its a nightmare.How are you this week?
  • Posted

    OMG i am really sorry to hear that have you tried putting salt in the bath you are having a rotten time of it, like i said man in when i was there and he had piles done and i felt really sorry for him he said never again as well. In real pain this week every time i eat it is getting worse have to go to see GP tomorrow and am going to ask if he will write a letter for me asking for a Lap as i really can't do this much longer getting really depressed now with the constant pain, i go for the review appointment next week with the Consultant and it better be him i see as i am not moving until i do as i am no longer prepared to put up with the monkey and not the organ grinder any longer as it has been going on far to long now.
  • Posted

    I dont blame you how many more excuses can they have if they gave it to you at least then youd know one way or another i just hope they dont mess you up when closing you my belly buttons a disgrace it looks like a no8.Yes ive tried salt,arnica bath soak from qvc the lot it really is a pain in the arse even passing wind is painful.i cant face a op down there id rather have another hysterectomy its easier to cope with you dont have to use your tum and it heals but your bum doesnt get any time to heal and going to the loo last time i was screaming my OH thought i was dieing.He saw ent last week about his snoring and they have put him on a very long waiting list to be fitted with a machine to monitor his sleep they think its the way his tounge sits in his mouth when he sleeps.Something has to be done i cant go on sleeping on a fold out bed in my daughters room he even wakes me from in there.I had to laugh he had this long camera down his nose ive been violated he said,i told him to shut up and be greatful hes not a woman ive had fingers and cameras in everywhere possible,men are big babies he gets so scared.Well i hope you had some luck today let me know i will keep checking on here today i cant see why they will refuse you,you do need a lap if i won the lottery i would come over and pay for you to be sorted out we would go private and then a long hoilday to recover.
  • Posted

    Oh god a long holiday would be heaven. Seen GP today and asked him if he thought it could be years old Endo due to my past history and children said it may be but up until i get a Lap will not know for definite, I said thought it was meant to die off after Meno he said not if on HRT and actually admiitted not even then sometimes and they don't know very much about it at least he's honest more than most are, so will definitely be pushing for 1 next week. Urine test worked this time and was negative no surprise there. Can't say that's being violated tell him after having children there is no such thing as dignity it's like a b****y peep show, give you a laugh though OH was bleeding from his bum and being as his dad died from prostate cancer told him to go and get it checked out didn't tell him how they did it though as i knew he wouldn't go boy was he cross when he came home said it was extremely painful and never again said that's why i didn't tell you before you went, his exact words were you knew you b***h and didn't say never spoke for ages at least i got peace and quiet that day still goes on about it yet (SHAME) Ha Ha i got a good laugh out of it.
  • Posted

    your a hell of a woman i would have loved to see yr ohs face when he realised what the doc was going to do lol,mine was the same we where in the waiting room and i saw the nurse go by with this really long metal instrument and go in the room he never saw it he had his head in a paper so i said nothing,im now down to a size 14 which is good but all my clothes are hanging on me its going to cost a fortune to replace my clothes.Thank god my bums better today and ive had a letter from the doc they are stopping movicol and putting me on flaxedo cause he says i have inpactation and over flow its orange flavoured so i hope its ok,have you ever been on it? Definately push for a lapo and tell the your gp thinks its what you need aswell.
  • Posted

    Never heard of it or taken it must be new doe's it have flax seeds in it just wondered?. I thought it was b****y hysterical when he came home and said would have loved to have been there just to see the look on his face. Glad your bum is a bit easier today am defo going to push for a Lap next week if he won't do it will ask for a second opinion and tell him what GP said.
  • Posted

    Im not sure whats in it to be honest i hope its not flax seeds they bung me up even more i will google it to find out.Do you think i should see the doc cause of my weight loss? im a bit concernd just dont know wheather to see about it i dont lose weight normally.
  • Posted

    I would defo see GP about the cause of your weight loss that's why i first went only small to begin with but never lost weight until all this started now go up and down like a yo yo have never reached 7 stone since highest i have been is 6 stone 4 and that was a push, if the endo/adhesions are attached to your bowel can cause all sorts of problems. That's why i am going to push it with Consultant this week was reading Endo is fed by estrogen and i have always been very low in progesterone that's why i had terrible problems having children and was fed Danol for years but never told why by anyone, if it is attached to the bowel can cause a blockage ask for a colonoscopy only way to find out.
  • Posted

    Thanks Leony i will make an appointment,ive been up all night in pain and my oh was snoring his bl***dy head off and driving me mad.Im sweating like mad so im drinking loads of water.ive not got much of a appetite either i will have to wieght 3 weeks to see him i guess hes always very busy.
  • Posted

    You must insist on colonoscopy as if the adhesions are causing a narrowing in your bowel can be life threatening sorry don't mean to scare you but better safe than sorry then they will have to go in and sort it out for you also insist on general anathestic (sp) not the nicest test in the book camera up bum, don't know if you have had it done before but who cares as long as your knocked out can be done as day procedure, the prep is the worst thing tastes lovely (not). Young girl was in when i was there only 21 had a C section done 12 months before to have her 2nd child in constant pain ever since told her it was her liver then kidneys eventually found out that the Gynea that stitched her up after her op had stitched her bowel to her liver and kidneys so were having to bring a specialist over from London to sort her out. Last time i spoke to her they had offered her a hundred and eleven thousand pound compo i told her to refuse as it was only the first offer hope she did. Take care and let me know how you go.
  • Posted

    I rang the docs and hes away till friday but they asked me to do a sample and i have to ring on friday so we will see then,dont worry you didnt scare me ive had a camera up my bum before and i was awake i was given a tablet to relax me it wasnt the worst thing in the world it was the wind afterwards lol and the prep its the same family as movicol yuch.Another saw bum lol.If i do have a narrowing i bet its o the left side and attched to my ovary thats why im in so much pain.
  • Posted

    Your probably right mine is all right sided that's where the cyst is on my right side the same side i broke my pelvis in the car accident years ago think that's where the scar tissue came from, when i do manage to go to the loo its b****y painful but am sure they don't believe me. Have my appointment on Thursday at 3 o'clock with Consultant so see what happens.

    Hope you get to see a your GP on Friday and get something sorted. Take care and let me know how it goes with GP and will let you know how it goes with the Consultant.

  • Posted

    Went to see the Consultant they have decided i have something called Sphincter of the Oddi dysfunction or common name for it is Bilary Dyskenisia something to do with the valve between the gall bladder, pancreas and liver nothing they can do for it apparently except pain management, only a few Doctors deal with it by injecting Botox into the valve but none here qualified to deal with it only over in Scotland and it may not work can cause pancreatitis so been referred to pain clinic and will refer me back to Gynea to see if they will do a Lap but don't expect any joy off them either. Did you get to see your GP today and if so any joy?.
  • Posted

    Im sorry they cant help you its the same with me wont touch adhesions just pain management its soul destroying its it.My results where ok and i have to wait 3 and a half wks to see him so i will see how it goes it could be my nerves with my ohs behaviour cause im goin away i dont know.

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