Ovarian Dermoid Cyst - Very Painful!!

My mam always comes with me and she is getting herself annoyed and stressed because no-one is doing anything about it!

I.wouldnt make up being in this much pain if that is what she is thinking i cant afford time off college! When i went about my pain 2 month ago my gp was going on about my knees when i was there for my abdominal he just wasnt listening to me at all. I have had so many different doctors and they have all said different things; its my period, its my bowels, i have ibs and one doctor said sometimes these things go unexplained.

I had my ultrasound on thursday and no-one has bothered to contact me or to talk to me and answer my questions! Im.hoping someone will this week, dont be afraid to.go if they are going to make you better then go and see what they have to say it will be for the best. I still havent had my period but i think it could be because of the cyst but im.not sure yes still go and see what they have to say and if they ask just mention that you are on your period, same for me! No-one understands so im glad i found others who are in my position and who i can talk to as its all i think about!

Hello ladies,

I was brave today, and went to see a gynaecologist! He saw my result, and told me, probably I need a surgery, and he will refer me to his collegue, who is a specialist of that.

Also I had a ca 125 done today, which came back result of 21.

Hopefully I will se that other doctor this week, lets see what he will say!

Hi Everyone

I am 25 and have been diagnosed with a 9cm Dermoid cyst on my left ovary. I originally went to the doctor as I suspected I had polycystic ovaries as I had not been having periods for 2 years and started to grow excess body hair.

I am having keyhole surgery to remove the cyst on the 9th December and I am absolutely petrified, the hospital have told me that it possible I could lose my left ovary which scares me as I want children in the future. Have any of you had this type of surgery and still managed to naturally conceive a baby?

Clare

Xx

Welcome Clare, - I tried to reply immediately but had forgotten my flipping password!

Please don't be petrified! Millions of women have had this procedure, and gone on to conceive completely naturally, even when one ovary has been removed. Keyhole surgery is the least invasive, - I had the same as you, a 9 X 13 dermoid cyst attached to my ovary. I walked out of hospital the following day. I'm over 10 years older than you, and am trying for a baby. There is no reason specifically relating to the surgery I had, that would prevent me from conceiving. The surgeon was very pleased, I remained intact (didn't lose an ovary), and with keyhole, the only trace of a scar I can now see is just at the top of my pubic area, and very faint, -about my little finger nail's length. Plus, when you wake up from your procedure you'll initially feel pretty wonderful,- not only because of the relief, but also because of the morphine dose you'll receive to protect you from the pain ;o).

I came on here, worried about pain I had a couple of weeks ago, and am in the process of checking out. During my doc visits I've been reassured. It may be taking me a little longer to conceive because of my age, and perhaps because one ovary functions better than the other.

Contrary to your experience I always had regular periods, before and since my op, so, of course you need to persist in finding out what's going on there. Strangely though, I had nearly a year without them when I was a year younger than you, and they came back of their own accord!

Bodies are wonderful, but confusing things! Please don't panic, I'm sure you'll be in safe hands,

X

Oh, and just one other thing, as I couldn't answer your question completely satisfactorily. Look at Sonar's story above. Her cyst occurred between her first and second child, and, so, you see, it is perfectly possible.

Suki

Thank you for that, it has put my mind at ease. I've found the NHS pretty sketchy with information about my fertility issues in general. But fingers crossed when the cyst has been removed things will start working again in the way they should.

I hope everything works itself out for you too!

I can't help panicking as this will be the first surgery I have ever had but hopefully everything will go smoothly.

Xx

Hi all Margaret here ,I had my dermoid removed in march and my ovaries ,if u read up I wrote about it,well its the best thing to have done no more pain yipeeeeee,well apart from just having another op on my kidneys 2 weeks ago,and now recovery from that.all I can say is ,fight and don't sit back and suffer ,get on to the surgeons sec ,keep phoning ,also get your gp to do this,and email them,otherwise they just forget you,make a noise tell them........I was told mine was ibs if u read my comments,load rubbish,..........I had to fight to get this done,so pleased now its over,my scar is almost invisible now I was cut 10inches,just thin line now so pleased,i suffered for 2years ,we need to fight girls and not let others suffer,so please tell them after all its your body ...NOT THERES... wishing you all a happy and well Christmas ,godbless you magsxx

by the way suki the operation is fine ,just rest well after and take pills and use heat pad I wish you well godbless mags xx

lol sorry I meant that message for clare tc xx

Thank you Margaret. Seeing all of these positive stories about the operation is making me feel a lot better about it xx

Hi guys my name is sonia im 25 ive been having abdominal pain for a few years now and ive have loads of episodes where I have had cysts and not known to the extent that they have burst inside of me. I was rushed to the hospital in april this year with what the doctors thought I had appendix however when the surgeon went in and realised it was a burst cyst a few months on after the op I was fine but recently ive been in pain again I was referred to a ultrasound only to be told that I have 2 cysts that are about 4.5cm on my left overy I may be sent for surgery to remove them however I dont want to lose my overy as I really want to have kids I want to ask of I get my left overy removed could there be a chance I get them on the right overy? Im so fed up of these episodes now I dont feel my self anymore. if there is any advice from the other ladies out there please reply as I really need people to tell me everything is going to be ok. Thank you xxx

Hi Ladies

I had a dermoid cyst removed 5 weeks ago via a bikini line incision. Both my ovaries remained intact and whilst the first week was painful and frustrating, I'm now back to driving & doing pretty much everything I was although a little more slowly!!

I do feel fraudulent when I read all your stories as I had no pain but ended up with a 16cm dermoid!!

My sister was recently experieincing similar syptoms to some of you ladies & pushed her GP for a scan, luckily all was clear with her, they've put it done to her ovulating?!

My advise to to anyone is push your GP, I was extremely fortunate to have had a lady GP who referred me for a scan on my first visit as I was suffering from heavy periods & she thought I might have a fibroid.....let alone a bloody huge cyst!! Even my gynae said that I was lucky as he would not have referred me if I'd gone to him with the heavy periods!! As marvellous as the male GPs/surgeons are I really don't hink they understand the pain we go through with periods etc...

Keep pestering ladies....you will get answers.

Good luck xx

Hi ladies

A question for those of you who have had keyhole surgery and ovaries and dermoid cyst removed, are you still tired. I started to feel better in the 4th week and thought hurrah, but this 6th week I have been feeling really awful, so tired, no energy and a bit tearful as so disappointed to be feeling worse again. I have started to work again but surprised if that is the reason as rest plenty in between.

Have any of you felt the same? Sorry for moaning but always nice to hear the experiences of those of you who already had op and what you are going through.

Thanks ladies, tearful too cos Mandela died today, what an amazing person!!

Oh no Bernie sorry to hear that. My circumstances although the same with cyst & ovary removal via keyhole,I had different outcome as I then went on to have facial surgery two weeks later so just as I started to feel better that set me back.

It's almost 8 weeks since my op & I feel fine & back to normal now.

Maybe you're coming down with something else, there are loads of viruses around.

Hope you start to feel better soon.

Thanks Sonar, sorry to hear you had more surgery that's unfortunate!

Maybe you are right, do feel I am fighting off a cold or something, but nothing has materialised, just frustrated when I was feeling better

Did you still have bruising after 6 wks, I have a faded bruise around my belly button and it is sore if I press it, so obviously insides must be still healing?

So nice to get a reply when you have a moan thanks