Ovaries, help!!!

Posted , 6 users are following.

Hi all,

Thank you for taking the time to read this. I have suffered since 2010 (birth of my daughter) with back pain, pelvc pain and was dealing with it OK until Christmas week when I started to get severe pain and urgently needing to wee. So I went to the GP who did a urine e test which came back fine, so she asked me to have bloods taken and referred me for an ultra sound scan. My inflammatory markers have been high since 2010 with no further investigations being made. Blood tests came back with high inflammation and raised CA 125. I have hardly slept as so worried, had my USS yesterday and an internal examination as the scan showed a cyst? The internal Examination showed a large cyst on my left ovary and a large 9.3cm either on my right or in the tube on the right side. He also mentioned haemorrhage. Has sent the report back to GP's requesting further investigations.

I am so worried, can't sleep. Has anyone else had this, I'm 34 and am a nervous wreck. Any comments or advice will be much appreciated. Thank you xx

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6 Replies

  • Posted

    Hi! I'm so sorry to hear about what you've been going through! I had a cyst on my right ovary which grew very quickly - in two months it went from 2cm to the size of a grapefruit! I had a CA 125 test and was so worried as well. I remember crying myself to sleep. I ultimately had to have the cyst removed. In saying all this, through the process I learned that a lot of doctors don't like the CA 125 test as it often gives false positives which causes even more worry for nothing. Sending prayers your way that your cysts get taken care of quickly and your pain goes away!

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  • Posted

    Never worried when my first pure (only liquid filled) cyst decided to grow from 5cm to 9cm

    and then show structures inside (a tumor, didn't look like hemorraged luteal cyst's blood/fibrin clot).

    Taken out, was a benign teratoma, done and dusted.

    With a doppler ultrasound, it can pretty much well seen, if structures were inside and, most important, if blood vessels were inside the cyst. That indicates a growth, a tumor of some sort (not all tumors are cancer).

    CA125 is a follow up marker for your own levels, to see what they do and can go into 100s with inflammation only. It is not a pure cancer marker at all. Do not get worried about it, until good histology of cyst with whatever in it (if there was anything in it) has been performed.

    If you have pain,

    it is reasonable to take the cyst out.

    It is unlikely to spontaneously rupture after a statistic size of 6cm diameter no matter what it is made of.

    Once the cyst is taken out and you still have pelvic pain, may I please suggest to look into pelvic congestion AND nutcracker (compression of left renal vein in the abdo aorta / SMA clamp).

    This vascular compression causes are often overlooked for pain cause and worse: often pelvic congestion is treated without looking as to why there were varicose veins in pelvis...often it is a backlog of dammed blood from the nutcracker and needs a different surgical approach, if putting on weight didn't help growing a fat pad around aorta to ease the aorta/SMA clamp.

    All all the best! Take care!

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    • Posted

      Thank you for the reply. I am in pain with the one on the right especially so they will need to be removed. The scan does state what is in the cysts and that there is evidence of haemorrhage. I am waiting for my appointment now and expecting the worse so that any less is a bonus.


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  • Posted

    Hi Nicola, 

    I dont know if you have heard about endometriosis but this can cause both pain during menstrual cycle and between cycles, it can also cause large cysts (endemtriomas, chocolate cysts), it can also block up your ovaries and finally it can also cause raised CA125 levels. - Ask your GP what the the cyst was, they can see whether its fluid filled or not.

    I had a 10.5cm chocolate cyst removed from my right ovary and they said the other ovary was blocked. My bowel and bladder had also adhered slightly, I have terrible period pains before and after surgery, pain in between cycles although not to bad and even after surgery i still bleed mid cycle. My surgeon told me my endo wasnt that bad. 

    Perhaps you should look up endo and see if any of it resonates, fyi they did histology on my cyst and it was fine. 

    Most cysts are benign and usually in younger people the risk of anything more sinister is very low, also the fact that you suddenly had worsening of symptoms would indicate there was something that just happened like a rupture or twist rather than a progressive problem.

    Good luck


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