ovary removal for endometriosis

Posted , 2 users are following.

I'm looking to hear from girls that have had ovaries removed years before normal menopause and how it affected life afterwards having hormones gone? Consultant has booked me in for hysterectomy and bi oopherectomy in May and I am starting to panic about my decision to go ahead?

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3 Replies

  • Posted

    Hi, I had these surgeries ten years ago (aged 32) and it was the best decision for me with freedom from pain for the first time despite having had stage four endo for many years. I had no hormone treatment as I wanted to give my body a break from everything. Six years passed without any pain (aside from post-surgery discomfort) and then some minor pain for the next two. The pain and problems have recurred though to be fair I have had serious health problems generally much related to endo as quite a bit had to left in and around the bowel. If I had to do it all again, I would - the weight gain was lost (having had all the hormonal treatment) and I personally have no regrets. Each person is different though; as for hormones to avoid menopause the remaining endo produces its own estriadol (similar to estrogen) and the disease is known to regenerate itself so.

    I've had endo since I was in my teens (17) and was at stage four endo with PCOS as well. I had four miscarriages and thus knew children were not an option; if you're ready for it in that regard, then perhaps it is the right decision. However, I still regret that I did never have the chance to be a mother and maybe if this is an issue you should perhaps postpone and discuss with others further.

    Hope this helps and others give you ansers to ensure you get a full and rounded response.

    Good luck and let me know if you want to chat about this.

    • Posted

      Thank you. I was lucky that despite miscarriages I was blessed with 2 children against the odds so I know how lucky I am. Over the years my pain is not as bad but probably because I've had laps to free organs that had fused. I havehad some really good advice from various posts and aalthough I'm still worrying my mind is being eased as probably the right thing to do. I guess its so final and can't be reversed the doubt niggles at me.
    • Posted

      Hi, it's normal to doubt your own mind particularly, as you say, because this would be so final. However, given you have children and the pain is still continuing, I would certainly say you've probably made the right decision though only you can know what's right for you.  As I said, for me, it was the best decision I ever made and to be fair, I think my condition only returned so quickly because of external factors. When I had the operation and moved to a quieter part of the UK, ate mostly organic food (particularly milk and cheese which has hormones injected to ensure production -namely oestrogen), my endo was fully controlled though I admit every now and again - i.e. once every few months - I would get a niggle pain aruond the surgical sites. Once I moved to a country where no organic produce is available or was expensive and my stress levels increased dramatically (my new husband is in the Army) the incidents of pain appeared to rise concurrent with my stress! If you want to talk in person (i.e. phone), send me a PM and I'll give you my number!

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