Posted , 4 users are following.
So, I was told over 12 years ago that I had an "extra rib" in my neck. They really had no clue what it was at first. For over a year, they pushed and poked, and probed me. I was suffering from migraines on a continuous basis. I had constant neck, should, and back pain. My doctor finally just sent me to every type of specialist there was. I had specialist tell me that it was unfair for them to even pretend to act like they had a clue what this was. Finally, after over a year or so, I had one of them say that it was an extra rib. That during that time, 12 plus years ago, the surgery was rare and his advice to me was to put off having the surgery as long as I possibly could. I'm from a small country area and that is the advice I was given. My doctor didn't know any better and I didn't know any better, so there I was enduring the pain of migraines, consistant preassure in my head, stiffness in my neck, back, and shoulders because I was trying go as long as I could. When the pain was to much I would have to go to the ER for shots of morphine. The pain just became to much to live with and i told my doctor that something has to happen. She sent me to a neurologist and he was blown away by the "stupidity" of the advice I had been given. He put me on Topamax, which has helped break up the constant pain but I still get the migraines. My surgery is coming up soon and the closer it gets...the more freaked out I get. I was told that the rib is huge in size. I have also been told that because of all the years of growth of muscle, nerve, and tendon around the bone, they will more than likely have to remove some nerve and muscle from under my arm as well. They say I will have to recover from the surgery and then do rehab to learn to use my neck and arm again.
Has anyone here ever heard of this or experienced this type of surgery for TOS? Just wondering about what to expect.
0 likes, 11 replies