Over a year and still waiting to be diagnosed

Posted , 4 users are following.

Hi All,

New here today, hi all.

My background-I first approached my GP because of sore, stiff, swollen hands in 2018, GP referred me to Rheumatology and found I had mild osteoarthritis in my hands. I got back pain in Sept 2018 soon followed by shoulder, neck, elbow, wrist and strangely the balls of my feet, lol. My knees hurt if I jump off a step now which they never used to.

I saw an Occupational Therapist for help with the hand pain and she referred me to a Physiotherapist for the back pain. He said Golfers Elbow, Tennis Elbow, possible Shoulder Impingment and maybe a disc problem with my back, he hasn't got to my feet yet.

I feel like I have some sort of systemic problem as my CRP is not raised and I think it would be if all these things were wrong with me. I sometimes feel like there's something crawling under the skin on my shin and around my bellybutton but there's nothing there, sleep badly and feel my bed is lumpy even though it's not.

I think it's Fibromyalgia but it seems impossible trying to get an appointment with the Rheumatoloist. I am going to speak to the GP next week again and try and get them to chase up.

Does anyone think this sound like Fibro? There is a lot of other symptoms that come and go but think I've wittered on enough for now.

Thanks all.

Di

0 likes, 11 replies

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11 Replies

  • Posted

    It does seem like Fibro do you get flu like symptoms ?

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    • Posted

      I occasionally feel a bit like I've got flu like symptoms, more so if I've done too much one day and a few hours later I'm all achy. I get overwhelming tiredness that makes me need to have a lie down right away as well.

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    • Posted

      Thanks for the reply. Who did you get your diagnosis from and did they go through a process of elimination and ended up with Fibro as the only thing that would explain your symptoms? I just want an answer from them and to stop passing me around and for them to do what they need to do.

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    • Posted

      My Doctor sent me for every test you can think of Cancer tests ,

      scans,mri,heart lung kidneys you name it i had it She then told me

      i had Fibro, but to back herself up she sent me to a specialist who

      checked me all over ,checked for rheumatism which i haven't got

      but with everything else she confirmed Fibro

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    • Posted

      I'll be speaking to the GP tomorrow so hopefully she has a clue about who to send me to and not one of the ones who tries to fob me off. I've only had an x-ray and ultrasound on my hands which showed mild osteo-arthritis and the bloods checking my inflammatory markers which were normal. I had an ECG the other week because of weird feelings in my chest and that was fine I think it's caused by anxiety. Hopefully the GP knows who to send me to.

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    • Posted

      Well I spoke to the GP today and told her the Physiotherapist thinks all the pains are more than likely Fibromyalgia. Can't say I feel very re-assured as she didn't really ask any questions about what problems I have and it was more of an ok if that's what they say then that's what it is.

      I asked if I get sent to see a specialist or back to Rheumatology and she said no because they are only interested in inflammatory conditions and don't deal with Fibro. I'm not sure what way to turn now I feel like I'm a bit in limbo, like there should be something else or some other check or test. Because I don't feel it's really been investigated I wonder if that's what it is or if there's something else.

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    • Posted

      I've got my physio on Tuesday and I'll ask him if he definitely thinks I have Fibro. It all feels though it's just off the cuff. I'll also ask him if he has any info about the pain team and if he doesn't I'll ask the GP.

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