Over active bladder need help!

Posted , 7 users are following.

I don't know why over active bladder is tied to fibro. As it isn't bad enough to suffer like we do, why am I now peeing every 5 minutes. Oh and with this change of season, I now have a cold. If I cough or sneeze I pee. This happened to me when I had a flare last year but it had stopped. I don't know why it's back. I don't know what to do! Need help!

I sometimes watch my niece. She is still new to potty training so I pack an extra set of clothes just in case but today I was the one who had an accident and didn't have a change of clothes. Wanted to cry. Didn't let her know but left quickly after.is anyone else going through this? What do you do? Meds, supplements diapers? So humiliated.

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  • Posted

    Hi Kiki - I'm a male and have had fibromyalgia for 31 years. I experience irritable bowel and bladder during a fibro flare along with a variety of other issues. It's not uncommon for fibro to have any part of our body at any time, act up and mimic everything from a heart attack to various rashes and tinnitus.

    I must say that your symptoms certainly sound unrelated to fibro and more like stress incontinence. You might want to have your doctor check you out. My sister had the same symptoms you are describing and diagnosed with stress incontinence. She was put on a med to control that bladder and they seemed to help her through it. Typically any type of laughing, sneezing or over exertion can cause leakage.

    I'm not a doctor and certainly your symptoms could be fibro related but it's best to get checked because I think you can at least be treated for that problem with the proper meds.

    I hope you get to the bottom of it and feel better soon.

    • Posted

      Thanks Glenn. They attributed the leaky bladder and ibs to my fibro. Had it under control for a while now. But this most recent flare has sent me running for the bathroom on a regular basis. While I stay close to restrooms, I'm scared every time I sneeze or cough. So frustrating and embarrassing. Trying to see my GP next week.

  • Posted

    I can totally relate to this, worse through the night, I'm maybe up and down 5 to 6 times to empty my bladder, I therefore I don't get much if any! It's ridiculous, I've been to doctor about it, and any advise given has never helped😂

  • Posted

    Yes - can definitely identify with this. I have got used to having to use liners or even, if going out and I know I don't have immediate access to the loos, using disposable pants.  I resisted for ages and ages but actually have to say that it is now second nature.  They are not bulky and I always carry a spare pair!  It has given me a sort of freedom in that the stress of worrying about it has been taken away somewhat.

    • Posted

      Thank you for responding. Just wish I knew what brought this back on. But while I have this cold I will try the liners and pants. Woke up 3 times during the night with coughing fits and had to get changed each time.
    • Posted

      I too find that colds make it worse. Do try liners or pants because it can be liberating - honest and it does save embarrassment redface

    • Posted

      Hi Kiki,

      Just wanted to let u know that stress can bring on bladder spasms, that may cause leaking and urgency. Also if your bowels are full, that could also affect the bladder.A lot of fibromyalgia patients are on different medications that can affect their bowels.I would recommend seeing a urologist if this continues.They will sometimes order antispasmodics that can help, like Ditropan and others.its all on an individual basis.

      Sometimes the symptoms go away and never come back and u don't have to stay on the medication. Hope your doing better.

    • Posted

      Thank you. From what Glenn wrote and my research it is stress incontinence. I don't know if it's a side effect from me taking medicine to treat my cold or stress that has brought it on but it's taking over my life.

      I tried using the liners but some of the coughing fits proved to be stronger than the liners.I go to the bathroom, place a liner, cough, pee and repeat. Already used half a box that's supposed to last 2 months in 2 days. Frustrated cause I can sit there and go, wait a few minutes and try to go again and nothing. So I think I have finally emptied my bladder but then I cough and learn I was wrong.

    • Posted

      It sounds like your not emptying your bladder totally. When I saw the urologist they recommended to urinate first, then standup and sit back down again and relax . You should be able to release the rest of the urine. They recommend that u do this everytime u go if u experience this. They also said Kegel excercises are great to help control your bladder,and muscles.

      Many woman experience bladder problems after pregnancy, gynecological surgery and with fibromyalgia. I learned it is something that can be treated,and u can live comfortably with.

      They did recommend not drinking sodas with color dye. I think it was Sprite Zero that they recommended if i wanted to drink sofa. It was easier on the bladder.Theres another more serious disorder that some fibromyalgia patients experience which affects the lining of the bladder. It's called Interstitial Cystitis, and ithe urologist can test patients for that, by doing a cystoscopy. I can't sleep and Im up typing, what's new lol

    • Posted

      Thank you. I will try it. I have the doctor on Friday. I had given up soda for a long time and it helped lessen my fibro symptoms. But since I haven't been sleeping, even less than usual, I've been needing a caffeine fix. Soda is my go to since I don't drink coffee. Wonder if I'm doing this to myself by drinking soda and taking meds.

    • Posted

      Thank you so much! You're advice worked. I cringed evrytime I sneezed and coughed today but I did not pee. Yay!

  • Posted

    The weirdest thing just now, I used to be able to pee for Scotland, as of late I want to go, however when I go to bathroom I can sit there for 20 minutes just waiting to empty my bladder, this is so unusual for myself as I've never been like this, sometimes through the night I can sit in bathroom for at least 30 minutes then eventually pass a dribble, just to start all over again maybe 20 to 30 minutes later xxxxx

    • Posted

      I'm so sorry to hear that Trisha. It's hard enough for those of us with fibro to sleep through the night as it is. To add getting up at all hours to go to the bathroom is even more exhausting. Hope you get to pee to Scotland again soon.

  • Posted

    Lol thank you Kiki, humour helps when you have Fabriomyalgia,however I don't think my son is too happy, are you done yet? Is all I hear, poor wee soul x😊

    • Posted

      This group and sense of humor are what get me through some days. If I didn't laugh or talk to you guys I would cry.

      My niece and I have made a game out of going potty. We race to the bathrooms. The full and half bathroom share a wall. And then we see who can go potty first. She wins evrytime. Sometimes she can't play. Doesn't have to go. 'You have to go again? Poor thing doesn't understand but I'm glad I have you guys to talk me through.

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