over active graves part 2

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Well, to save loosing the thread ive decided to start a new thread now before losing contact with everyone.

Yes barry i went hyper to hypo, went back on carbinazole, off it on it and so on for a while. when i did go underactive i felt terrible

have you had rai at the royal in liverpool? thats were i went

hope everyone else is ok and finds this new thread ok,

cheers and all the best for the new year Dave

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  • Posted

    hi dave thanks for replying,yes i went to the royal in liverpool they were very good to be honest,had my rai on wensday gone, started my carbimazole today 20 mg. How do you feel now mate ? ive got to take carbs for 4 weeks then stop and return to the royal in 6 weeks for chec hope ur ok? take care all
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  • Posted

    you sound like your following pretty much same as me, i was back on carbinazole after rai.

    i felt great in the summer but really tired now, going the docs next week, maybe its just getting older?

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  • Posted

    Hi guys!

    I have had graves for 5 yrs and had rai in july 2009. I was not put on carb after at all. I then went profoundly underactive in oct 2009. I started on thyroxine straight away and have had probs with this since around june this year due antibodies so I am starting again back on carbimazole and thyroxine to block and replace! Think you will feel good shortly it just takes time to balance. Advice would be to get regular blood tests and if you are tired and slow heart rate etc get to the docs as you are prob going under!

    Good luck xx

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  • Posted

    hi jilli and welcome,

    ive heard of block and replace before, dont really get it, why block and replace?

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  • Posted

    Hi Barry. Thanks for your reply. I was feeling a bit down, but you're right I'll get there in the end. It's just that you feel you're getting better, and then it all goes wrong again.

    I'm sorry about your panic attacks. I sometimes get them in the middle of the night when I can't sleep. Are you feeling a bit better after the rai?

    I suppose it's early days yet. Take care.

    Dave. You were asking about block and replace. I was fine when I was on that. If they block your thyroid and stop it working altogether then they know exactly how much thyroxine to give you. Otherwise they're trying to balance the amount of thyroxine they give you with the amount that's being produced by your thyroid which will vary as the thyroid's not working properly.

    Hope everyone is ok.

    Take care.

    Marigolc

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  • Posted

    hi marigold,

    i get you now, seems a sensible way to deal with it.

    barry/marigold, i used to suffer from panic attacks and anxiety all the time, then it would flick to parania! i know it doesnt help much but it is a normal symptom and you just got to dig in

    wheres everyone else? i want to hear are you all are

    keep positive, all the best dave

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  • Posted

    Hi all,how are we all feeling? I've been feeling abit better this week and sleeping better I think that helps,my eye lids have been abit dry and puffy and I get cold very easily. Is anyone having alcohol over the Xmas period? I havnt had a beer since august and wonder if it's safe to do so? Merry Xmas everyone
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  • Posted

    yes ive had a good drink, did last year but didnt feel good, was suffering under active, i was ok drinking just didnt really have the energy!

    i never had a drink out only in the house as if i became exhausted i only had to make it to bed!

    dave

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  • Posted

    hi all,

    i have just read all your posts and just as about im to write and ask how you all are i have forgotten what you have wrote :oops: I thought my memory would improve ,it did for a while now its as bad as before.

    I too feel rough at the moment ,feeling tired,cant get warm miserable face

    cant smile ,cant be bothered with anything ,dry mouth that also feels like

    like plastic ,cant control my appetite putting loads of unwanted weight on

    I will be glad to see my endo on 18th hope he can do something for me.

    If i am offerd RAI do i have to have an iodene scan before hand .

    thinking of you all

    sue x

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  • Posted

    Hi Barry. Are you feeling any better? I hope everything goes ok when you see the endo tomorrow. Let us know how you get on.

    Take care.

    Marigold.

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  • Posted

    Hi Mari thanks for asking,I've been off the carbs now for 8 days as advised before I see specialist tomoro,I've been suffering from really cold sensations and feeling tired alot more than I did,the thing that bothers me most since rai is the feeling of my my throat and back of nose feeling congested and the taste in my mouth,how have u been ? I will let you know how I get on take care
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  • Posted

    hi all,

    docotr phoned me over xmas, my recent tsh was 6.16 so they have upped my meds to 125mcg, thought something wasnt right!

    never mind, happy new year we all doing well, anyone heard from elaine?

    dave

    [color=orange:81c452d443][b:81c452d443](EMIS Moderators have removed an email address from this posting, as it is the policy of Patient UK not to publish these on the forum. If you wish to communicate directly with people, you should register, for free, with the forum. You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail)[/b:81c452d443][/color:81c452d443]

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  • Posted

    Hi everyone, my levels have dropped really low so I am now hypo but could still be transient after the rai,they want to see me again in 2 months but not sure if I can go on that long unless my levels pick up, I feel half asleep all the time, dave could u MSG me ur email on here as the site as the site have removed it, hope everyone us ok gone quiet on here lately
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  • Posted

    Hi Barry. You must be feeling very fed up now. I thought they'd have put you on thyroxine, but I expect they know what they're doing. It sounds like the rai has worked anyway. I'm not sure if it's worked for me. I'm back on 40 carb and 100 thyroxine. I feel really well at the moment. I feel really calm. In fact I can't remember ever feeling this calm before. 8)

    My eyes are sore, and I sometimes have difficulty swallowing properly if I'm eating something dry. but apart from that I'm ok.

    I have to come off all medication in three months and see what happens. I'll know then whether the rai has worked. I wish I could just stay on the block and replace, but I'll have to come off the carbimazole at some point.

    Dave, I was wondering what had happened to Elaine too. I hope she's ok.

    Take care everybody.

    Marigold

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  • Posted

    Evening All. Barry - Like Marigold I am surprised that they are leaving you hypo with no meds for a further 2 months. Please be sure to go get blood done before then if you continue to feel poorly/hypo. Marigold - fingers crossed for you coming of your meds. I really hope the RAI has worked for you, even if it is taking its time to do its job! My endo once told me that for some people it works more quickly than for others. It didnt work for me at all. I could have a second blast but to be honest I am still on only 5mg carbimazole a day and am feeling grand. So much so that I have totally forgotten that I should have been at GPs last week to have my bloods done. Must arrange it tomorrow! Yes, I was wondering about Elaine too, and Bess. Is everything ok with you girls?

    Lotte.

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