over active graves part 2

Hi Barry, well done!! As Jane said your TSH is right in the middle. I think if you're an anxious sort of person you probably always will be anxious. I'm feeling very jumpy at the moment, although my bloods are normal. If there's a sudden noise I'm just about to scrape off the ceiling.

Take care.

Hi Jane. Sorry about your sore throat. There's always a degree of risk with any operation due to the anaesthetic, so you need to take that into account too. I know it's a tough decision. Take care.

Hope everyone else is coping.

Marigold

Hi All, Glad to hear everyone is doing ok about bloody time we all started to feel a bit better!!!!!!!!!!

Jane i think they would rather go down the rai route as its cheaper to take a pill than have a major operation also, i dont think that they like to do thyroidectomy`s these days unless absolutley neccessary. I had my rai nearly a year ago & have had no adverse effects from it no matter what route is taken its a long, long road to recovery. Sorry if i sound a bit depressing dont mean to just think that docs & endos tend to say that once you have treatment everything will be ok but, thats not always the case. Anyway whatever you decide its an individual choice . Take care all. Elaine.

hi every one .

glad you are feeling better barry ,hope it keeps up for you.

marigold elaine and jane hope you are all well too ,jane my endo told me there was less risk with rai so that is what i am going to do.

i have phoned christies ,had to talk to answer machine and no one has got back so will phone again monday ,not heard from endo either so another phone call to them monday.Had 2 of my grandsons for a couple of days along with 2 dogs as it was one of my daughters 40th birthday on the 10th ,she has had it rough the last 2 yrs what with losing her dad 2 major ops as well as being hypothyroid .

My dla form has come today my dr said he would support me as i have copd and severe asthma and now he has said put down my hyperthyroid where as before he said you could not claim for this . I certainly need help getting around but can cook and wash myself .Coping with this thyroid breathlessness aswell as asthma (again affect me differently)means i struggle .do any of you think i should put in for it .only i have seen on some american websites they can get dla for thyroid conditions

you views would be realy wecome .sorry about my typing i am agatated and over tired today

take care all of you and thanks for being here sue xx

hi every one .

glad you are feeling better barry ,hope it keeps up for you.

marigold elaine and jane hope you are all well too ,jane my endo told me there was less risk with rai so that is what i am going to do.

i have phoned christies ,had to talk to answer machine and no one has got back so will phone again monday ,not heard from endo either so another phone call to them monday.Had 2 of my grandsons for a couple of days along with 2 dogs as it was one of my daughters 40th birthday on the 10th ,she has had it rough the last 2 yrs what with losing her dad 2 major ops as well as being hypothyroid .

My dla form has come today my dr said he would support me as i have copd and severe asthma and now he has said put down my hyperthyroid where as before he said you could not claim for this . I certainly need help getting around but can cook and wash myself .Coping with this thyroid breathlessness aswell as asthma (again affect me differently)means i struggle .do any of you think i should put in for it .only i have seen on some american websites they can get dla for thyroid conditions

you views would be realy wecome .sorry about my typing i am agatated and over tired today

take care all of you and thanks for being here sue xx

Hello Sue, sorry you are having such a struggle, lets hope when the Summer comes (when !) you will feel a lot better. Over the years I have helped a lot of people fill out these forms (part of my job) and I certainly think you should apply. To struggle on with copd, asthma and now thyroid problems certainly warrants all the help you can get - go for it !! Remember, its the squeeky wheel that gets oiled ! Good luck with it, you have nothing to lose by applying. Take care, Bess.

Hi Sue. Isn't it awful when you're waiting for someone to ring back and they don't?It's bad manners.

Bess is right, you need all the help you can get. Good luck.

We've been baby sitting this weekend too. Our little granddaughter is eighteen months, and she decided it was playtime at 4 o'clock this morning, so I feel a bit tired today. :lol: She's gone home now, and it's so quiet.

Take care everyone.

Marigold

Sue,

Bless you it sounds like it's your turn for that end of the stick at present! This is temporary and things will get better. I am a half full kinda girl despite GD.

I don't know much about benefits but it's my impression that many people who should get them don't because of the complicated system we have. Give it a go and see what happens, you cannot loose.

Keep on with making sure that you get your appointments, how else can you get better.

Take care

Glad everyone else is ok

Jane

Hi Everyone,

Just catching up on all the new posts.

Hi Jane & Sue glad you found this site it has provided me with a lot of information that has helped me at appointments etc and just knowing that you are not the only one with all these crazy symptoms really helps!

I'm feeling a bit better this week (shouldn't have said that out loud) think the lower dose of Carb is starting to work. Although I have noticed that the right side of my neck where my thyroid is, is slightly swollen, not had this before so a bit worried.

Bess I love your saying \"it's the squeaky wheel that gets oiled\" boy is that true with me dealing with the staff at my GP's they are about as helpful as a chocolate teapot!! I seem to be constantly on the phone chasing them for

something, Sue they also said they would call back and guess what they

didn't!!

Right I'm off to try and get some sleep might be tricky have a Hubby beside me snoring his head off after too much red wine with his Sunday dinner!

Take Care and keep popping those pills,

Kat x

Me again - forgot to ask has anyone tried taking vitamin D supplements?

If so any improvement?

I read this week on t'internet that there could be some evidence that people with Graves could be lacking vitamin D.

Just wondered what you all thought.

Kat x

Kat,

My neck is up and down sometimes swollen and sometimes not, it's always on the right side. Sometimes both sides go red and you can see the thyroid shape in the redness. I went to see my gp when it first happenned he said that it is typical graves and not to worry. I was all panicky worrying about it and he just said \"I spotted it the very first time you came that's why I thought that you might have graves\". I hadn't noticed it at that point.

I cannot believe how many times I've seen my GP in the last 5 weeks more than I've seen him in the last five years for sure.

He did fail to spot GD in 2008 when I suddenly became all pannicky with palputations and lost a load of weight. After a few weeks off work it seemed to sort it's self out, I refused medication (antidepresants) and have been ok until recently. My GP regrets not doing a blood test or taking my blood pressure then and has been very supportive this time around. Clearly the no meds thing is now long gone as I now rattle just as much as the next GD patient.

Anyway take care

Jane

hello everyone , thanks for your replies.Phoned christies again today ,still no joy ,answer machine again .bess thankyou over the dla ,i have phoned help the aged and someone is coming out next monday to help fill in the form .I have an eye test tomorrow and so glad its one of the last apps.my eye trouble with the flashing lights and floaters was Posterior Vitreous Detachment ,i was discharged from the clinic but gave a leaflet and numbers to phone if it happens again.

I asked my doctor about vitimen D he said i am checked for that in my full blood count and my levels were good so maybe yours are too.

I have felt horrible today and fell asleep all afternoon,got no energy at all but managed to hoover up and nothing else :oops: I have been reading a site called suite 101 . com (hope thats right )i am tring to find out about my brain fog its worring me so much my memory really scares me how bad it is

keep taking the pills and take care all of you and thanks for being here

sue xx

hi everyone, great to see all the posts, sorry ive not got time to read them all, will come back on when i get chance

im not doing bad, feel fairly good, still tired gonna get some bloods done v soon

take it easy all

dave

hi everyone,good to hear from you dave glad ur ok,i took a big step today and went back the gym only done a very light work out tho i feel knackered now but phsysologically it has helped me alot.

My anxiety has reduced alot but still suffering with sinus and catarrh and sleep at night but never been the best of sleepers anyway.how is everyine else doing ? take care barry

Hi Everyone,

How are we all doing?

I went to see Peter Kay in Newcastle on Monday, he is one funny man. Managed to walk the mile to the arena from the hotel, going so slow snails were overtaking me!! There was a steep hill at the end nearly finished me off had to stand for 5 mins to get my breath and heart back to normal. I felt 92 instead of 42!!!

Then the panicky feelings started and I thought I couldn't go in however put my head down and made it to our seats had to do some serious deep breathing but I managed to stay, sooo glad I did.

I've had confirmation this morning that I'm booked in next Monday for a cardioversion which fingers crossed will put my heart back into a normal rhythm. My heart racing and palpitations was what made me go to the Doctor last May which then lead to me being diagnosed with Graves.

I bit nervous but who wouldn't be, the whole thing takes 10 mins amazing

My eyes have been quite bad this week a bit sore and blurry, just Graves/thyroid I think or too much time on the computer googling Graves!!!

Anyway enough of my ramblings,

Have the best weekend you can.

Kat xxxx

Hi Kat. Pleased you got to see Peter Kay, it would do you the world of good. Nothing beats a good laugh. I hope everything goes ok for you on Monday, I'll be thinking about you. It's amazing what they can do isn't it?

You're bound to be nervous, it's only natural, but I bet when it's over you'll wonder what you've been worrying about.

My eyes get sore and blurry too. I don't think the computer helps. I forget to blink.

We had a cover of snow when we got up this morning, and it's snowed on and off all day. It's turned to rain now. Nevermind Spring will soon be here.

Take care,

Marigold.

Hi Barry,

I'm pleased you're feeling better, and managed to get back to the gym. It makes you feel that you're getting better when you do things that you used to do before.

Take care.

Hope everyone else is ok.

Marigold