over active thyroid

Posted , 7 users are following.

Hi Everyone,

I was diagnosed with an over active thyroid on 8/7/10. I have been taking 40mg Carbimazole a day for the last 5 weeks. The first 3/4 weeks were a nightmare. I was having good and bad days, thankfully this has improved in the last week or so. I saw the specialist yesterday and he's more or less advised the same as my GP, re. treatment. He has prescribed Levothyroxine 100mg in addition to the carbimazole, which I will start taking in 2 weeks time. The joys of having this condition!

My symptoms seemed to have calmed down now, ie. disturbed sleep, irritable, shortness of breath, palpitations, feeling hot, tiredness, slight tingling in face. My main worry is returning back to work and how I will cope. I am hoping to go back on a phased return, but am worried about my mood swings as my work is pretty stressful.

I would be grateful for all your advise/comments on returning to work and how you all coped. Is it normal to gain weight whilst taking carbimazole and levothyroxine? I have gained approx 2 kgs since taking tablets after losing approx 1/2 stone prior. My stomach swelled up like a balloon a few days ago and I looked about 5 months pregnant!

Look forward to all your comments.



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  • Posted

    Hi Barry, Marigold and Suzy,

    Glad it's not only me getting this annoying dry cough then! Just put it down to the change in weather and it was only when someone in work asked whether it was to do with my thyroid that I though I would ask you all.

    It's been coming and going and unlike Barry said, I don't get any phlegm, just an annoying urge to clear my throat a lot and sometimes have to cough a bit as well. My eyes are not bulging, just the eyelids sticking now and then.

    Forgot to mention that I sometimes get stomach ache as well. Feels like my stomach is bloated but it's usually a few hours after I have eaten. The previous excessive hunger is non-existant now and I am back to eating normally.

    Barry, re. my meds. I seem to be steady now after being on carbimazole and thyroxine. I haven't had a blood test since August, just before I saw the Endo and he said that I would be on block and replace for 18 months. All being well, I will continue on my meds for this period and then see how it goes. The Endo, did advise that I should stop my meds immediately if I should develop a sore throat and a very high temp and to a get a blood test taken asap. One of my work colleagues is under-active and I asked her whether she had been advised to stop her meds, but she said no. Guess it must be something to do with the carbimazole.

    Take care and keep me updated on how you are all coping,


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  • Posted

    hi, pandagirl.

    I once read that a tickly cough is another one of the list of symptoms ,i too have it now and again ,i always have strepsils in .

    i dont feel so alone now reading everyones experiences and its helped me to understand my own symptoms as i was in a terrible state coping with losing my husband and dad and wondering what the hell was wrong with me at the same time. I am only just thinking clearer and my memory isnt as bad as it was .My excessive hunger is getting on my nerves and i tend to choke alot on my food ,At night i have to get my neck in a certain position as i can feel a nodule pushing into my throat and that gives me a tickly cough.

    this forum has helped me more than my endo in understanding thyroid desease . keep warm sue

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  • Posted

    I've just found this board having been diagnosed with hyper few weeks ago & I've just staretd on carbimazole.

    Margaret, I think the reason you haveto be careful with sore throat when on carbimazole is cos it can effect your white blood cells so if you get sore throat, high temp, unusual bruising or rashes you must stop your meds & see your doc. Think they do a blood test, check your white blood cells & maybe put you on different meds if your blood count doesn't improve!

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  • Posted

    Hi, Hope everyone is well. Haven't posted for a while as I forgot my password, so am back under different user name.

    How is everyone getting on? Just wanted to check this with you all. How long apart are your appointments with Endocrinologist? I was diagosed with over-active thyroid in July 2010 and had my first appointment in August 2010 and have just had my 2nd appointment on 11th April, that's 8 months since my last appointment. Is this normal, as I was advised that my appointments should be every 3/4 months? I had blood tests taken back in August to check for anitbodies and was advised that based on results, I might need to go for scan. As my next appointment in November was cancelled I presumed that the results were negative and continued on block and replace, as advised by my Endoc.

    At my last appointment with Endo in April, he surprised me by telling me that the results taken in August were not received and that I would have to have the antibodies test again! I am shocked and annoyed that this was not followed up by my GP or my Endoc. I am due to have my thyroid scan in May and the Endoc advised that he would be making an appointment for me to see the nurse, (not received app for this yet) so that she can keep an eye on my progress.

    Has anyone had the thyroid scan and what does it entail?

    Let me know how you are all doing and here's hoping you all have a Happy Easter.


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  • Posted

    margret ,hi hun,we are all on the the graves 2 thread come on that ,we are on page 17 now ,nice to have you back ,take care sue x
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  • Posted


    I am one of the abnormalities of this condition, considering I was diagnosed at the age of 15 (whilst doing my GCSE's). I had been going backwards and forwards to the doctors with numerous different issues: sweating, heart palpertation, achyness but eventually they worked out what it was. I was on carbimazole and thyroxine at the same time...every day is different...some days I didn't want to leave my bed, Id argue with my family..whereas other days I would feel completely normal. The best way to deal with it is to just take a deep breath and go for it. Keep calm and fight the thyroid!

    I am now 19, after 2 years off medication (except for having to be on iron tablets and fainting numerous occasions for low blood sugar..basically my body hates me) My thyroid is now back..and it's awful, am studying music at university (being a vocalist with a constant cough and swollen throat isn't the best) but although my flatmates stuggle with my constant mood swings i am trying to keep positive, but damn it is hard. Blood tests this week, and doctors next week...hopefully we will find out that it is just needing to go back on medication and it is nothing worse.

    Any other teenagers struggling with this? x

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