Over active Thyroid surgery?

Unfortunately the way doctors treat this illness is outdated and the push for RAI and thyroid surgery is awful.  They do not know how to prescribe the meds, and there is a lot of new information on treating the disease with supplements as well as antithyroid meds.  When I just followed doctors orders the first year, my results stayed static.  Then I did my research, added L-Carntiine and then Acetyl-L-Carnitine and vitamin D as well as Magnesium to my treatment regimen and I went into remission.  Have my own thyroid working very well now.  The push for the other two therapies is the result of Big Pharma who is making big bucks on Synthroid thyroid replacement.  Almost 1 billion dollars a year to be exact.

Thanks for the support. It helps having someone who knows what they are talking about.

Hi Linda

I had a look in the pharmacy yesterday and found L-Carntiine  - really expensive over here. Just wonderring if theres anything to be allergic to.  My adrenals showed maladaption stage 2 18 months back and I'm sure they are worse now as my sensitivity to perfumes etc has gone insane.  My face is numb and I have tingling in my back, legs, buttocks, hands and feet. TSH remains in normal range but my bosy is in pain and I am having upset stomachs every other day. Doctor says I have multiple chemical sensitivity but the thyroid and adrenals must be causing this. What would you reccomend I take? L-Carntiine, Vit D and Calcium? anything else? cannot take any more of this.  Cant work, go shopping, drive as I cant tollerate exhaust, perfume etc.  Taking 2 x PTU 50mg daily and 2 x 10mg Propranolol daily.  Regards Jeanette

When I saw the article, I asked my doctor to test my Carnitine levels because I did not want to have too much if I didn't need it but I was deficient in Carnitine and most people with Graves and hyperthyroidism are because they lose it from their muscles when their system is running so fast.  Also, my TSH was not normal, it was 0 and I really wanted to normalize that.  So I felt good on it until my values started heading towards hypo, then I did not feel good on it and had to stop it.  So I don't really know the answer to your question.  I would have the test done first to see what your levels are.  I too am very allergic to dust and mold but right now there is nothing I can do about it except to keep rinsing my nose and as much as possible not be around it.  Many people are deficient in Vitamin D and I had that tested and was deficient as well so for those two supplements that's what worked for me about taking them.  The regular L-carnitine is not as sensitive as the Acetyl although the Acetyl did help raise my TSH, it just works too fast and raises too much if you are not on top of it monitoring and adjusting.  What does your doc say about treating your adrenal problem?  I heard some people take Ashwaghanda for that.

Docs haven't given me any advice as they say they've never seen a case like mine. Tested positive to mycotoxins, Lyme and borderline vasculitis. Low vitamin D, and DHEA, multiple tiny cysts in liver, kidneys, ovaries, breasts and multinodular goiter (largest being 2cm), multiple chemical sensitivities, keep becoming hypothermic and feel like I'm going to die and the doctors just shrug their shoulders and say you don't have lyme, everyone has mycotoxins in their bodies, the cysts are normal findings, these symptoms are nothing to do with your hyperthyroidism and we don't know what's causing this.  Really helpful ! even when I have been to ER for a bad attack they just shrug and say they don't know what's causing it. They don't bother to run tests, just send me home when it's stopped.

Have you been assessed by an Immunologist?  If not, try to see a specialist in this.  Lyme disease was not an accepted diagnosis in Canada until recently and it is still not routinely accepted or treated.  It's possible you have more than one disease but a lot of autoimmune problems are caused by environment and lifestyle and diet.  Since you have documented you are deficient in vitamin D as are most hyperthyroid patients, supplementing this would help.

I have been on a low dose of methimazole for 8 years now and have had no liver abnormalities or blood count abnormalities and at low doses, no side effects.  People get liver abnormalities from the disease itself and from the antithyroid drugs if on high doses.  Doctors can get just as good results on lower doses, there are medical papers written on this subject, but they are not willing to learn or change.

I made the decision that I wasnt going to stay longterm on carbimazole as it was wreaking havoc on my body.  It made me twice as sick.  Everyone is different and some can tolerate it better.  Longterm use worried me

I use techniques like Mindfulness, breathing, massage, stress reducers like a nice bath with Epsom salts.  I do not like it when I fly off the handle and I can't blame it on my Graves because my lab tests are all normal now and I have no antibodies. 

I also belong to a support group called Adult Children of Alcoholics and that helps me as well.