Over doing it when the sun shines .e
Posted , 8 users are following.
We have had a lovely few sunny days here ,so I thought I woul get stuck in and help my husband alter our garden to make life easier for us as we get older or as him 'always in the garden would hope ' that it would make the house more salable .
i Now understand what you mean by a flare up ,because I cut my dose of qqsteroids over a week ago and have past the withdrawal stage . Now do I stay longer at 11.5 mg ,perhaps another week or go back up to 12mg again .feel like I am giving up .What I have found that works for me is to drop .5 mg for 1 week then the second half for a fortnight .
I haven't felt as bad as this for a few months .Its back in my neck shoulders and arms .Both hands are swollen in knuckles .What would anyone else do ? And for how long ? Advice please .Made my self take our Nell for a walk for an hour which although cold out did do me good .But now of to take some pain killers and a cup of tea
1 like, 11 replies
pat38625 carol16456
Posted
Do you have any Arnica gel, it is very good for bruises also arithtic type of pain, it takes the edge off it and some people swear by it. I remember enjoying the absence of pain and I thought I was great and did too much. But I paid for it. Not necessarily a flare up but the weakness and dizzyness just knocked me out.
Dome of the more experienced people on the forum will be able to help you, they have loads of experience and advice and support. Good luck Carol. Regards Pat
carol16456 pat38625
Posted
pat38625 carol16456
Posted
margaret22251 carol16456
Posted
so i have learned take each day as it comes
EileenH carol16456
Posted
I'd certainly go back to the previous dose - it isn't giving in, it is being realistic. You might even find you need a bit more for a few days. You should be able to go back to the 12mg quickly though.
https://patient.info/forums/discuss/pmr-gca-and-other-website-addresses-35316
And I'll bang on about it again: in the 4th and 5th posts of the thread this link takes you to you will find a very slow reduction which avoids even the withdrawal pain you still get with 1/2mg steps. We used to suggest going this slowly for lower doses - more recently it has been used at higher doses and people have far fewer problems with reductions at any level as a result.
And REST now! A warm shower may help - I hesitate to recommend a bath as I wouldn't dare have one! And arnica may help the sore bits.
MrsO-UK_Surrey carol16456
Posted
carol16456 MrsO-UK_Surrey
Posted
Oregonjohn-UK carol16456
Posted
carol16456 Oregonjohn-UK
Posted
julian. carol16456
Posted
Being swallowed by a snake is quick. Overdo the gardening or any effort is like being swallowed by a snake. And the effects linger.
Climbing a ladder is a slow tedious incremental journey. One step at a time. Reduce the dose, see what happens. Do some gardening, see what happens. Do a bit more gardening.
Just a case of working out how much gardening, or anything else, I can do and pacing myself accordingly. Even if only an hour or so and a couple of hours rest. Or even a couple of days. Different things so I'm using different muscles in different ways.
Finding the balance between the preds, the pain, and activity is simply managing the problem. If it needs more preds for a while then so be it. Nothing to do with giving up. Even though it feels like it.
What seems important to me is that the metaphorical ladder can be climbed. And if a snake comes along and swallows me there's another ladder nearby. Not looking for the ladder would be "giving up".
carol16456 julian.
Posted