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I was diagnosed with SLE, extreme photosensitivity and connective tissue disease. I also have liver hepatitis which has been ongoing since 2011. I am overwhelmed. My body is literally falling apart. My days are filled with doctor appointments, PT, and trying to control pain. I take 400mg hydroxychloroquine and was taking Imuran as well but had to stop Imuran as i had a bad reaction: crying uncontrollably. It’s as if my entire life has changed overnight. How do i prioritize? How do i self care? Will life get better? Suggestions are welcome.
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