Overwhelming fear of Bell's Palsy not improving

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I have had Bell's Palsy for 16 weeks now.  I still cannot move my eyebrow, smile, close my eye and have difficulty speaking, especially when fatigued.  The severe pain behind my left ear and pain in my cheek has eased.  I am so fearful of it not improving or going away.  I had it on the right side of my face in 1992.  I honestly don't remember how long it took to go away, but it did.  I was left with occassional spasams in my jaw.  I find myself crying in fear anxiety and frustration.

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  • Posted

    Hello Valerie,

    I have had Bell's palsy for 17 weeks today, and at 10 weeks, with no improvement at all I started electro stimulation once a week and after 2 weeks I had a flicker under my eye, after another week I could smile again, although my mouth is still lopsided it is progress, I am now having 2 appointments a week and working really hard to get my eyebrow working, I also still can't close my eye or blink, but I do have a small flicker in my forehead, which I take as a good sign. Before I started this therapy I thought there was no hope, but I'm amazed what difference 7 weeks have made, I know I still have a long road ahead, but I'm well on my way to recovery. Are you having any medical assistance at all? Good luck with your recovery x

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    • Posted

      Hello michlove1985

      No, I haed a medical disgnosis, but no medical assistance.  Who do you go to and how did you obtain the electro stimulation?  My son is a massafe therapist and has urged me to manually lift my eyebrow and move my cheeks into a smile.  It's difficult for me.  I'm very frightened.

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    • Posted

      I was referred by the hospital, they tend not to send you until you've given your face a chance to correct itself, as you've had no improvement your GP or hospital consultant should be doing something for you, I was having fort nightly visits to ENT department in the first 10 weeks, before I was referred. I also have to do the manual exercises alongside my electro stimulation, my physio recommends I do it every hour, or as often as I can.

      I know this is a terrifying condition, and I too was a complete wreck, I would recommend you push for some medical assistance as I myself have improved a lot in the last few weeks because of this, I really hope you begin your road to recovery really soon, and even though it's really hard for you right now, things WILL improve, just need a lot of patience, please keep in touch, I will support you as much as I can X

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    • Posted

      Thanks michlove1985.  When I had it in 1992, I worked with a PT.  She showed me some exzercises to do.  It really helped.  However, this time, I have to move my facial muscles with my fingers as they will not budge on their own.  I guess I need to increase the frequesncy I do  it.  Thanks for your support.
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  • Posted

    I've had it will be 5 years febuary & I haven't been able to find any doctors to help me. I can't smile 😔 I'm so depressed since I got it. I was 5 mths pregnant with my daughter and it's like I don't like to take pictures and I'm sad she will never get to see me smile the right way. I just feel so broken

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